跳至主要内容
临床试验/NCT03803423
NCT03803423招募中不适用

Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors

Johns Hopkins University12 个研究点 分布在 1 个国家目标入组 1,000 人开始时间: 2017年11月27日最近更新:
适应症

试验速览

阶段
不适用
状态
招募中
入组人数
1,000
试验地点
12
主要终点
Potential donors identified

研究概览

简要总结

This study utilizes a web-based application to help patients on the organ transplant waitlist communicate patient's need for a living donor via social media and provide interested potential donors the opportunity to engage with the evaluation process.

详细描述

Barriers to identifying a live donor include lack of education and hesitance to initiate a conversation about live donation. For these reasons, many transplant candidates are hesitant to discuss candidate's illness and are therefore reluctant to pursue live donor transplantation. The investigators hypothesize that utilization of social media to spread awareness about candidate's illness and candidate's need for a live donor will enable many transplant candidates to successfully identify live donors. In this study, participants will use a novel web-based application, called the "Donor App", to create and share candidate's story via Facebook and other social networks to assist in the search for a live donor.

研究设计

研究类型
Interventional
分配方式
Na
干预模型
Single Group
主要目的
Other
盲法
None

入排标准

年龄范围
18 Years 至 —(Adult, Older Adult)
性别
All
接受健康志愿者

入选标准

  • At least 18 years of age
  • On the kidney-only or liver-only transplant waiting list at a collaborating center

排除标准

  • Younger than 18 years of age
  • Not on the kidney or liver transplant waiting list
  • On multiple organ transplant waiting lists

结局指标

主要结局

Potential donors identified

时间窗: Up to 5 years

Number of potential live donors that come forward to the transplant center on behalf of the participant.

Live donor transplantation

时间窗: Up to 5 years

Number of participants that receive a live donor transplant.

次要结局

  • App utilization as assessed by number of participants with story completion and posting in the donor app(Up to 5 years)
  • The Donor App Implementation(Up to 5 years)

研究者

申办方类型
Other
责任方
Sponsor

研究点 (12)

Loading locations...

相似试验