Parent-to-parent Coaching While Awaiting Hospital Discharge With a Child With a Ventilator
- Conditions
- EmpowermentChildren With Medical ComplexityHome NursingInvasive Mechanical Ventilation
- Interventions
- Behavioral: Parent-to-parent coaching
- Registration Number
- NCT05880953
- Lead Sponsor
- University of Chicago
- Brief Summary
The objective of the study is to pilot a parent-to-parent coaching model with experienced family members of children with Invasive Mechanical Ventilation (IMV) as parent coaches.
- Detailed Description
The objective of the study is to pilot a parent-to-parent coaching model with experienced family members of children with IMV as parent coaches. Parent coaches will advise parents of children with IMV awaiting hospital discharge on strategies for advocating for home nursing. Parents and parent coaches will meet as needed and engagement will be tailored to parent preference: text messaging, video or phone conferencing, or in-person visiting in the family home or hospital. Points of contact, issues addressed, and time required will be collected as needs assessment data to appropriately size and scale a future intervention. Enrollment and exit assessments will include completion of the Family Empowerment Scale (FES) and a brief structured interview about parents' perceived impact and acceptability, which will provide pilot data to inform a future intervention. The investigator hypothesizes that parents will gain self-advocacy skills specific to recruiting home health nurses and improve the size of their home nursing workforce through this coaching model.
Recruitment & Eligibility
- Status
- ACTIVE_NOT_RECRUITING
- Sex
- All
- Target Recruitment
- 30
- Parents of children with a tracheostomy and ventilator awaiting hospital discharge in Illinois.
- Parents must live or have their child hospitalized within approximately a 1 hour radius of the University of Chicago.
- The child must be enrolled in, or in the process of enrolling in the Division of Specialized Care for Children (DSCC) Home Care Program.
- The parent/legal guardian must have legal custody of the child and plan on living with the child in the home.
- Wards of the state
Study & Design
- Study Type
- INTERVENTIONAL
- Study Design
- SINGLE_GROUP
- Arm && Interventions
Group Intervention Description Parent Coaching Parent-to-parent coaching Participants will be involved for about 6 months or until they feel that they no longer need the parent-to-parent support. Parents will participate in the following contact attempts: * Introductions and rapport building which will include a demographic survey with a needs assessment, and the Family Empowerment Scale (FES) * A series of coaching points which may include some or all of the following topics * Interviewing and selecting a home health agency * Expectation setting for home based nursing care * Tips for finding home health professionals from inpatient nursing * Tips for using personal and professional care networks to find and recruit home health team members * An exit interview assessment including the FES and components of the demographic survey that may have changed
- Primary Outcome Measures
Name Time Method Change in parent empowerment as measured by the family empowerment scale (FES) Baseline and repeated at exit (either at 6 months or when parents choose to exit the study) Parents will complete the Family Empowerment Scale (FES), a 34-item scale designed to assess empowerment in parents whose children have emotional disabilities.
- Secondary Outcome Measures
Name Time Method Satisfaction with coaching program exit (either at 6 months or when parents choose to exit the study) Parents will complete a structured interview about their satisfaction with the program.
Change in nursing coverage Baseline and repeated at exit (either at 6 months or when parents choose to exit the study) Parents will complete REDCap survey indicating their home nursing coverage.
Trial Locations
- Locations (1)
University of Chicago
🇺🇸Chicago, Illinois, United States