Feasibility Study of the Head and Neck Survivorship Tool: Assessment and Recommendations (HN-STAR)

Completed

Brief Summary: This study is being done to understand how survivors of head and neck cancer think they can make HN-STAR (the Survivor Self-Assessment, the survivorship clinic experience, and the Survivorship Care Plan the best it can be. Once the investigators have your input and input from other survivors, they can make changes to HN-STAR, so that they can test this tool in a larger study. The larger study will tell them whether using HN-STAR improves the care of head and neck cancer survivors.

Recruitment & Eligibility

Inclusion Criteria

Aim 1: Part 1

Have completed treatment for head and neck cancer at least 1 year prior to survivorship visit and have no evidence of disease
Have a primary care provider
Be able to provide informed consent
Be able to speak and read English
Be at least 18 years old

Aim 1: Part 2

Have completed treatment for head and neck cancer at least 1 year prior to survivorship visit and have no evidence of disease
Have a primary care provider
Be able to provide informed consent
Be able to speak and read English
Be at least 18 years old

Exclusion Criteria

Aim 1: Parts 1 and 2 is the same

Patients or providers who cannot speak or read English
Patients with cognitive, visual, or motor impairment such that they cannot complete the Survivor Self-Assessment as assessed by the research team.

Primary Outcome Measures

Name	Time	Method
Recommendations for Cancer Surveillance (Patient-reported Outcomes From the Survivor Self-Assessment)	2 years	Using data from survivors in Aim 1: Part 2 (N=45), we will abstract data on health care actions from both the medical record and HN-STAR. Such data include receipt of appropriate oncologic surveillance, identification and management of symptoms, and appropriate preventive health services, as indicated by referrals, prescriptions, and recommendations in both clinic notes and the HN-STAR Survivor Self-Assessment. For each participant, HN-STAR generates a Treatment Summary/TS for the clinician to review and verify its accuracy compared with clinical documentation with the participant medical record.

Secondary Outcome Measures

Name	Time	Method

Locations (2): Hartford Healthcare Cancer Institute @ Hartford Hospital
🇺🇸
Hartford, Connecticut, United States
Memorial Sloan Kettering Cancer Center
🇺🇸
New York, New York, United States
Hartford Healthcare Cancer Institute @ Hartford Hospital
🇺🇸Hartford, Connecticut, United States