NCT03154697招募中不适用
Development of Clinical Database of Individuals With Smith-Magenis Syndrome
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 1,000
- 试验地点
- 1
- 主要终点
- Number of individuals with Smith- Magenis syndrome
研究概览
简要总结
This database will be used to better understand the sleep problems of people with SMS. This clinical database will be a part of a larger Smith-Magenis Patient Registry used to create an awareness campaign around SMS and the sleep disturbances that are characteristic of the disorder.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 3 Years 至 65 Years（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Parent or legal guardian of individual with Smith-Magenis Syndrome
排除标准
- •Not legal guardian of individual with SMS
结局指标
主要结局
Number of individuals with Smith- Magenis syndrome
时间窗: 5 years
次要结局
- Sleep Disturbances(Up to 100 weeks)
研究者
研究点 (1)
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