ACTRN12624000381583招募中Unknown
A longitudinal natural history study characterising and tracking of patients with Inherited Neurodegenerative Disorders (INDD)
St Vincent's Health Network0 个研究点目标入组 100 人开始时间: 2024年4月2日最近更新:
适应症
试验速览
- 阶段
- Unknown
- 状态
- 招募中
- 发起方
- 入组人数
- 100
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 18 Years 至 o limit（—）
- 性别
- All
入选标准
- •Patient participants
- •Adult patients aged greater than or equal to 18 years with a clinical diagnosis of INDD regardless of prior genetic testing results
- •Adult patients aged greater than or equal to 18 years who are genotype positive but clinically unaffected at time of enrolment
- •Capacity to personally consent
- •Understands spoken and written English
- •Ability to travel to research site
- •Computer literate and access to a computer/tablet/smart phone
- •Healthy control participant
- •A spouse/friend aged greater than or equal to 18 years, of those consenting patient participants who:
- •Has capacity to personally consent
- •Understands spoken and written English
- •Has ability to travel to research site
- •Computer literate and access to a computer/tablet/smart phone
排除标准
- 未提供
研究者
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