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A survey of patients and families with gastrointestinal polyposis syndromes from children to adults

Not Applicable
Recruiting
Conditions
Peutz-Jeghers syndrome, Juvenile polyposis syndrome, Cowden syndrome, PTEN hamartoma tumor syndrome
C04.445.435 C04.700.633
Registration Number
JPRN-jRCT1031230466
Lead Sponsor
Sakamoto Hirotsugu
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Recruiting
Sex
All
Target Recruitment
100
Inclusion Criteria

Patients (including family members) with a diagnosis of Peutz-Jeghers syndrome (PJS), Juvenile Polyposis Syndrome (JPS), or Cowden syndrome/PTEN Hamartoma Tumor Syndrome (PHTS).

Exclusion Criteria

Those who have difficulty reading the 2D barcode on their devices or answering the questionnaire and those who are unable to cooperate with the survey.

Study & Design

Study Type
Other
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Secondary Outcome Measures
NameTimeMethod
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