A survey of patients and families with gastrointestinal polyposis syndromes from children to adults
Not Applicable
Recruiting
- Conditions
- Peutz-Jeghers syndrome, Juvenile polyposis syndrome, Cowden syndrome, PTEN hamartoma tumor syndromeC04.445.435 C04.700.633
- Registration Number
- JPRN-jRCT1031230466
- Lead Sponsor
- Sakamoto Hirotsugu
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 100
Inclusion Criteria
Patients (including family members) with a diagnosis of Peutz-Jeghers syndrome (PJS), Juvenile Polyposis Syndrome (JPS), or Cowden syndrome/PTEN Hamartoma Tumor Syndrome (PHTS).
Exclusion Criteria
Those who have difficulty reading the 2D barcode on their devices or answering the questionnaire and those who are unable to cooperate with the survey.
Study & Design
- Study Type
- Other
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method