Persons With Disabilities Generating Quality Metrics to Inform Integrated Care
Trial Snapshot
- Phase
- Not Applicable
- Status
- Completed
- Enrollment
- 451
- Primary Endpoint
- Improved Quality of Care
Study Overview
Brief Summary
No standard way exists to measure the quality of medical care or independent living long-term services and supports provided to persons with disabilities. This project will: provide a broader picture of how consumers with disabilities define care and care quality; measure the value of using consumers' expertise in developing, collecting, and assessing quality measures; and use this information to assist One Care providers in improving care delivered to their enrollees
Detailed Description
The aims of the project are as follows:
- To work with persons with significant physical disabilities and serious and persistent mental illness to develop two new approaches to assess quality of care:
Approach #1: We will survey enrollees about their experiences in One Care and their thoughts about the care they receive. This survey will also ask One Care enrollees about how they manage their care and what self-direction means to them. The survey will be called the Persons with Disabilities Quality Survey (PDQ-S), and it will be available in English and Spanish versions.
Approach #2: Enrollees in One Care will provide information about their perceptions of care quality to a trained team of persons with disabilities who will report the information to One Care care teams. The goal of the activity is to support quality improvement in One Care through hearing the consumer's voice. This is called YES Health - Your Experience: Speak up for better health care. 2. We want to test how providing consumer informed and consumer directed quality information to One Care providers affects One Care quality. 3. We want to improve the ability of One Care enrollees to manage their own health care and to recognize and report quality problems
Study Design
- Study Type
- Interventional
- Allocation
- Randomized
- Intervention Model
- Parallel
- Primary Purpose
- Health Services Research
- Masking
- Double (Participant, Care Provider)
Masking Description
Randomization was performed at the level of primary care practice. Providers and patients were unaware of assignment to study arms
Eligibility Criteria
- Ages
- 21 Years to 64 Years (Adult)
- Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- •One Care enrollee
- •Permanent physical disability and/or serious mental illness
- •Seen at designated practice site
- •English or Spanish speaking
Exclusion Criteria
- •Persons with an intellectual or a developmental disability
Arms & Interventions
Control - Standard Practice
Standard measures of quality at baseline. No intervention reports sent to providers
Survey
Persons with Disabilities Quality Survey.PDQS Survey Reports Intervention.reports sent to providers of OneCare enrollees
Intervention: Survey (Other)
YESHealth
Arm 3: YESHealth Reports and PDQS Survey Reports sent to providers of OneCare enrollees
Intervention: Survey (Other)
YESHealth
Arm 3: YESHealth Reports and PDQS Survey Reports sent to providers of OneCare enrollees
Intervention: YESHealth (Other)
Outcomes
Primary Outcomes
Improved Quality of Care
Time Frame: 12 months
% who agree that their quality of care Is better, the same or worse than before
Secondary Outcomes
No secondary outcomes reported
Investigators
Lisa Iezzoni
Principal Investigator
Massachusetts General Hospital