The Quality of Life a Direct Financial Costs Associated With Home Ventilation of Children: A Prospective Study
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Children Receiving Ventilation at Home for Chronic Illness or Disease
- Sponsor
- University of British Columbia
- Enrollment
- 90
- Locations
- 1
- Primary Endpoint
- The Quality of Life and Direct Financial Costs Associated With Home Ventilation
- Status
- Completed
- Last Updated
- 8 years ago
Overview
Brief Summary
The investigators wish to learn about the quality of life (QOL) of children needing long term home ventilation and also that of their regular caregivers. In addition, the investigators will monitor the extra health-related expenses these families must meet. Data will be collected using two age-specific questionnaires of QOL plus a third one validated for assessing chronic health care costs. Questionnaires will be administered at an initial face to face meeting, supplemented by two telephone follow-up calls, to monitor medical expenses, one and two months later.
Investigators
Michael Seear
Principle Investigator
University of British Columbia
Eligibility Criteria
Inclusion Criteria
- •All families, or appointed guardians, caring for children that need home ventilatory support will be eligible for enrollment
Exclusion Criteria
- •Refusal to join the study
Outcomes
Primary Outcomes
The Quality of Life and Direct Financial Costs Associated With Home Ventilation
Time Frame: One year starting june 2013.
Quality of life for children on home ventilation will be assessed using the validated PedsQL score. This has been specifically designed to measure quality outcome in children with long term health problems.
Secondary Outcomes
- The Quality of Life a Direct Financial Costs Associated With Home Ventilation(One year starting june 2013)