The Effectiveness of Dialogical Family Guidance in Families With a Child With Neurodevelopmental Disorders
Trial Snapshot
- Phase
- Not Applicable
- Status
- Recruiting
- Sponsor
- Tampere University
- Enrollment
- 50
- Locations
- 1
- Primary Endpoint
- FAFHES
Study Overview
Brief Summary
This new family intervention, called Dialogical Family Guidance (DFG) is developed to target family needs especially in families with a child with neurodevelopmental disorders. PhD study showed, that this intervention is functioning with this target group. Participants (families) experienced that they got information, guidance to ordinary life and that the DFG-therapists were listening to them and above all, helping with individual problems and questions. DFG include six meetings and professionals need to attend on a 3-day long education before using this intervention.
Detailed Description
Previous studies have highlighted the need for families with a child with neurodevelopmental disorders, to get guidance to daily life, information and also professionals who allow parents to share their own experiences, feelings and questions. Dialogical Family Guidance is developed to offer target families (participants) the help mentioned above. This study is a postdoctoral study to achieve more knowledge and understanding about DFG intervention. This Postdoctoral study is focusing on DFG effectivity offered to families with young children (5-7years). Researchers also want to receive information about DFG effectivity between different units inside and outside the university hospital. Comparation between different units using DFG is one goal with this postdoc study. These results may give researchers deeper understanding when deciding where (university hospital och basic level units) and for whom (childrens age?) DFG intervention is giving the most optimal help.
Study Design
- Study Type
- Interventional
- Allocation
- Non Randomized
- Intervention Model
- Parallel
- Primary Purpose
- Supportive Care
- Masking
- Double (Participant, Care Provider)
Masking Description
Families include both parents and children. Parents fill the questionnaires, but all family members attend on the meetings during the intervention (six meetings).
Eligibility Criteria
- Ages
- 4 Years to 13 Years (Child)
- Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- •Families with a child with clinical diagnosis within neurodevelopmental ambrella (ADHD, Tourette, Autism disorder, OCD...).
- •the child must be between 4-13 years.
Exclusion Criteria
- •Families who do not understand finnish language (because they can not fill the questionnaires and professionals offering DFG are all finnish speaking). At least one parent needs to talk finnish.
- •Families who are not motivated to receive DFG.
- •Families who do not have a child with neurodevelopmental disorders.
Arms & Interventions
Intervention group
These families receive Dialogical family guidance, including six meetings (during 3 months) within the intervention manual proceedings. Parents fill the questionnaires before and after the intervention.
Intervention: Dialogical Family Guidance (DFG) (Behavioral)
comparative group
These families (parents in the family) give responses how they manage in ordinary life with their child with neurodevelopmental disorders.
These families do not receive the intervention.
Outcomes
Primary Outcomes
FAFHES
Time Frame: 0 months and 3 months
FAFHES (Family Function, Health, and Social Support-questionnaire). The name of the questionnaire explains the content of this questionnaire that includes three sections: family functionality (19 items), family health (23 items), family support provided by professionals (21 items). Likert scale is used with ranging from 1-6 (1= disagree totally......6=I agree totally).
Secondary Outcomes
- DFG-questionnaire(3 months)
- SDQ-p questionnaire (Strengths and difficulties regarding the child)(0 months and 3 months)
Investigators
Diana Cavonius-Rintahaka
PhD
Tampere University