Evaluate the Vision / Expectations of Patients and Caregivers for Patient-Reported Experience Measures (PREMs). Single-Center Prospective Study (Calydial). Mixed Research (Quantitative and Qualitative)

Patient experience encompasses all interactions a healthcare organization has with a patient and their family, potentially influencing their perceptions throughout their healthcare journey. These interactions are shaped both by the policies implemented by the facility and by the personal history and culture of each patient. Patient experience is a subjective concept that can be standardized and objectified. Even if standardized, known as a care pathway, it will still be experienced differently by each patient (depending on whether they are optimistic or pessimistic, live alone or not, and whether they reside in a rural or urban area).

The objective of our work is to evaluate the experience of our care pathway, the factors influencing patient experience, and the caregiver experience. Our facility comprises several units located in the south of Lyon and the north of Isère, providing care for chronic kidney disease at all stages. Our work focused on patients with stage 5 chronic kidney disease treated with hemodialysis (center, medically assisted dialysis unit, and self-dialysis) and home dialysis (hemodialysis and peritoneal dialysis).

The primary objective of this work is to describe the vision, representations, and beliefs of professionals and patients regarding the role and place of the user during their care journey at the Calydial renal health facility.

Methodology: mixed qualitative and quantitative research.

• Qualitative research: semi-structured interviews with patients and caregivers. The objective is to define the meaning of the patient experience from the perspectives of patients and caregivers.
• Single-center prospective quantitative study: design of two questionnaires (one for patients and one for caregivers).