The desire to die in palliative care: Optimalization of management

Not Applicable

• Conditions: Development of conversation guide, Management of desire to die in palliative care

• Registration Number: DRKS00012988
• Lead Sponsor: MSH - Zentrum für Palliativmedizin Mildred-Scheel-Haus

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2017-09-27
• Study Completion: 2020-12-31
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Complete
• Sex: All
• Target Recruitment: 87

Inclusion Criteria

step 1:

patients:
*life expectancy 3 to 9 months
*good German speaker competency
*cognitively and conditionally able to give an interview
*adult
*written consent

experts:
*Occupational group (multi-professional plus ethical experts, patient representatives)
*At least 5 years of experience with DD and/or suicidality
*High scores in self-assed confidence and expertise in DD

step 2:

HPs:
*worked with palliative patients in the past year
*written consent

step 3:

patients:
*good German speaker competency
*cognitively and conditionally able to give an interview
*adult
*written consent

relatives:
*relatives of palliative patients that died in the past year in Cologne
*good German speaker competency
*adult
*written consent

HPs:
*used the conversation guide
*worked with palliative patients in the past year
*written consent

Exclusion Criteria

Patients:
*life expectancy less than 3 months
*not cognitively or conditionally able to give an interview

All participants:
*bad German speaker competency
*no written consent
*do not wish to partake

Study & Design

• Study Type: interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Optimalization of the HP-patient relationship <br><br>(questionnaires, pre: max. 1 week before conversations, post: max. 1 week after conversations, and follow-up: 4-6 weeks after conversations)<br><br>PDRQ-9 – German: questionnaire assessing the HP-patient-relationship<br><br>DADDS – G- Death and Dying Distress Scale German Version: assessing fears of death and dying<br><br>SAHD-D – Schedule of Attitudes Towards Hastened Death German Version: assessing desire to die<br><br>PHQ9- Patient Health Questionnaire: assessing depression<br><br>BHS - Beck Hopelessness Scale: assessing hopelessness<br><br>VAS – visual analogue scale: assessing will of life<br>

Secondary Outcome Measures

Name	Time	Method
Development of a conversation guide