What is the Perceived Role of Risk in DOC Healthcare.
- Conditions
- Disorders of Consciousness
- Registration Number
- NCT06647433
- Lead Sponsor
- University of Nottingham
- Brief Summary
Critical ethnography exploring how decisions are made on behalf of people in disorder of consciousness (DOC).
Prospective longitudinal case study design including observation, field interview and video reflexive ethnography.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- NOT_YET_RECRUITING
- Sex
- All
- Target Recruitment
- 40
- People in a DOC:
- Working diagnosis of being in a DOC.
- Have an appropriate family member able to act as a consultee.
- Over 18 years of age.
Family members and healthcare workers:
- conversational English.
- able to give consent.
- over 18 years of age.
- Involved in decision making on behalf of a person in a DOC
Person in a Disorder of Consciousness
- Not in a DOC, diagnosis uncertain, or appears to be emerging.
- Clinically unstable or approaching the end of their life.
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Meaning based themes on what influences decision making in DOC 2 years Thematic analysis (TA) will consolidate and develop themes across all data sources (i.e., interview and VRE transcripts, field notes). The planned TA approach will borrow theory from reflexive thematic analysis (Braun \& Clarke, 2022) and a critical realist TA approach which supports causal explanation development (Fryer, 2022). Causal research questions will be developed and refined throughout data collection and explored through TA.
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (1)
University of Nottingham
🇬🇧Nottingham, United Kingdom