Group medical appointments for neuromuscular patients
- Conditions
- The following specific chronic neuromuscular diseases are selected: <br />1. Myotonic dystrophy = myotone dystrofie 2. facioscapulohumeral dystrophy, 3. chronic progressive externalophthalmoplegia, 4. oculopharyngeal muscular dystrophy, 5. inclusion body myositis, 6. McArdles'disease
- Registration Number
- NL-OMON28911
- Lead Sponsor
- njversitair Medisch Centrum Nijmegen Radboud
- Brief Summary
/A
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- Not specified
- Target Recruitment
- 270
Inclusion Criteria
Follow up patients > 18 year, with the following specific chronic neuromuscular diseases are selected:
1. Myotonic dystrophy = myotone dystrofie
Exclusion Criteria
1. Hearing impairment
2. Not able to communicate well in Dutch language
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method - Quality of life
- Secondary Outcome Measures
Name Time Method - self-efficacy<br /><br>- patient- and partner satisfaction with care <br /><br>- functional activities<br /><br>- service utilization <br /><br>- costs<br />