To compare group medical appointments (shared medical appointments or group visits) with conventional one to one appointments for patients with a chronic neuromuscular disease in terms of health outcome (quality of life) and costs

njversitair Medisch Centrum Nijmegen Radboud0 sites270 target enrollmentTBD

ConditionsThe following specific chronic neuromuscular diseases are selected: <br />1. Myotonic dystrophy = myotone dystrofie 2. facioscapulohumeral dystrophy, 3. chronic progressive externalophthalmoplegia, 4. oculopharyngeal muscular dystrophy, 5. inclusion body myositis, 6. McArdles'disease

Overview

Phase: N/A
Intervention: Not specified
Conditions: The following specific chronic neuromuscular diseases are selected: <br />1. Myotonic dystrophy = myotone dystrofie 2. facioscapulohumeral dystrophy, 3. chronic progressive externalophthalmoplegia, 4. oculopharyngeal muscular dystrophy, 5. inclusion body myositis, 6. McArdles'disease
Sponsor: njversitair Medisch Centrum Nijmegen Radboud
Enrollment: 270
Status: Not Yet Recruiting
Last Updated: 2 years ago

Overview Investigators Eligibility Criteria Outcomes Similar Trials

Overview

Brief Summary

Registry

who.int

Start Date

TBD

End Date

TBD

Last Updated

2 years ago

Study Type

Interventional

Investigators

Sponsor

njversitair Medisch Centrum Nijmegen Radboud

Eligibility Criteria

Inclusion Criteria

•Follow up patients \> 18 year, with the following specific chronic neuromuscular diseases are selected:
•1\. Myotonic dystrophy \= myotone dystrofie

Exclusion Criteria

•1\. Hearing impairment
•2\. Not able to communicate well in Dutch language

Outcomes

Primary Outcomes

Not specified

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