Caregivers view of what helps and hinders Home Exercise Programme (HEP) in people with Parkinson’s – A Qualitative Study

Not yet recruiting

Conditions: Parkinsons patients caregiver

Registration Number: CTRI/2025/05/087978

Lead Sponsor: Fathima M

Brief Summary: A progressive neurodegenerative condition, Parkinsons disease PD results in both motor and non motor abnormalities. It is linked to the destruction of dopaminergic neurons and a subsequent drop in the neurotransmitter dopamine. The average prevalence of Parkinsons disease PD worldwide is 160 per 100000 suggesting that the condition may be more prevalent in India. .

It is anticipated that the number of PD patients will also rise as the population ages in the future. Parkinsons disease affects about 1 to 2 people out of every 1000 in the general population but the number of cases increases with age. Around 1% of people over the age of 60 are affected, and both new and existing cases become more common as people get older. People with Parkinson disease benefit from exercise because it reduces impairment and enhances quality of life.

Since home rehabilitation helps patients improve their motor function and form self-exercising habits it is a promising substitute for outpatient or inpatient rehabilitation programs. Prior research has demonstrated that exercising at home significantly enhances quality of life, stepping qualities, and balance.

Family members frequently serve as caregivers helping with everyday tasks and offering emotional support during the healing process.

They rely on caregivers to help them with everyday living activities as well as to continue their rehabilitation through at home exercise regimens. .

In the community maintaining a consistent exercise regimen is a common challenge for both healthy and chronically disabled older adults.

Researchers have explored various elements that may impact the consistency of exercise participation in older adults and have introduced the term motivator to explain aspects that encourage participation and the term barriers which explain those hinder participation. The Need of the study is to find out the enablers and barriers of PD patients in HEP through caregivers perception.

Detailed Description: Not available

Recruitment & Eligibility

Status: Not Yet Recruiting

Sex: All

Target Recruitment: 15

Inclusion Criteria

Caregivers of Parkinson patients.
Caregivers of patients with Barthel Index activities of daily living score between 0-80% Caregiver who are willing to give an informed consent.

Exclusion Criteria

•Paid caregivers or professional healthcare workers.
•Multiple caregivers for the same patient.

Study & Design

Study Type: Observational

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
SEMI-STRUCTURED QUESTIONNAIRE	30 to 45 min

Secondary Outcome Measures

Name	Time	Method
THE BARTHEL INDEX total score 0 to 100	5min

Trial Locations

Locations (1): Father Muller Medical College
🇮🇳
Kannada, KARNATAKA, India
Father Muller Medical College
🇮🇳Kannada, KARNATAKA, India
Fathima M
Principal investigator
7034310584
fathimafaathi7@gmail.com