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Clinical Trials/JPRN-jRCTs031230310
JPRN-jRCTs031230310
Recruiting
Phase 2

A pilot study of the long-term safety and efficacy of oral sirolimus in patients with relapsed or refractory acquired chronic pure red cell aplasia - A pilot study of sirolimus for aPRCA

akazawa Hideyuki0 sites5 target enrollmentAugust 28, 2023

Overview

Phase
Phase 2
Intervention
Not specified
Conditions
Not specified
Sponsor
akazawa Hideyuki
Enrollment
5
Status
Recruiting
Last Updated
2 years ago

Overview

Brief Summary

No summary available.

Registry
who.int
Start Date
August 28, 2023
End Date
TBD
Last Updated
2 years ago
Study Type
Interventional
Sex
All

Investigators

Sponsor
akazawa Hideyuki

Eligibility Criteria

Inclusion Criteria

  • (1\) Common criteria of acquired chronic pure red cell aplasia (PRCA): the diagnosis referred to a clinical guide for PRCA by a Japanese National Research Group on Idiopathic Bone Marrow Filure Syndromes of the Ministry of Health, Labour, and Welfare, revised in 2021\.
  • (2\) Hemoglobin (Hb) level of less than 9 g/dL within 4 weeks before informed consent
  • (3\) At least one of the indications listed below (a) to (d):
  • (a) a refractory disease: anemia being refractory to cyclosporine (CsA) treatment with a full dose for preceding \>\= months
  • (b) an intolerant disease: having CsA treatment being withdrawn due to its adverse events (ex. renal toxicity, hypertension)
  • (c) an intoerant disease: withholding CsA treatment due to its adverse events (ex. renal toxicity, hypertension)
  • (d) a relapsed disease: anemia being relapsing due to dose reduction or cesation of CsA treatment after clinical response to CsA
  • (4\) Age 18 years or above
  • (5\) Written informed consent

Exclusion Criteria

  • Exclusion criterias:
  • (1\) A woman during pregnancy or breastfeeding, or a man or woman without consent to contraception until 12 weeks after last dose of administration of the study drug
  • (2\) Clinical symptoms of interstitial lung disease such as cough, dyspnea, or fever
  • (3\) A medical history of sirolimus or other mTOR inhibitors
  • (4\) A medical history of immunosuppressive therapy (cyclosporine, corticosteroid, cyclophosphamide, etc.) for acquired chronic pure red cell aplasia within 5 weeks before consent.
  • (5\) A major surgery, requiring red blood cell transfusion, such as a surgery of a body cavity or a surgery with 3 or more sutures (including, biopsy), being scheduled between 2 weeks prior to the first dose of the study drug and 1 year after the consent
  • (6\) A hematopoietic stem cell transplantation scheduled within 6 months of the consent
  • (7\) Any of the laboratory results within 4 weeks of the consent; platelet count \< 75,000/mm3, neutrophil count \< 1,000/mm3, of white blood cell count \< 2,500/mm3
  • (8\) AST or ALT \> 3 times the upper limit of the reference range within 4 weeks of the consent
  • (9\) Child\-Pugh C

Outcomes

Primary Outcomes

Not specified

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