Study on psychological effects and moral implications of a continued pregnancy of a child identified as carrier of Huntington's disease
Recruiting
- Conditions
- hereditary brain disorderneurogenetic disorder10016214
- Registration Number
- NL-OMON41170
- Lead Sponsor
- eids Universitair Medisch Centrum
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- Not specified
- Target Recruitment
- 24
Inclusion Criteria
couples who have continued a pregnancy with identified Huntington's disease
Exclusion Criteria
Couples who have objected against using their data
Incompetent, e.g. as a result of symptoms of Huntington's disease, the healthy partner will be asked to participate in the interview
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <p>Zijn er individuele psychologische en morele conflicten bij ouders als gevolg<br /><br>van de beslissing de zwangerschap niet af te laten breken?<br /><br>2. Zijn er psychologische en morele conflicten in de relatie gerelateerd aan de<br /><br>beslissing de zwangerschap niet af te breken?<br /><br>3. Hoe handelen ouders jegens hun kinderen wat betreft het informeren over hun<br /><br>dragerschap voor HD?</p><br>
- Secondary Outcome Measures
Name Time Method <p>NOT APPROPRIATE</p><br>