Evaluation of a website for parents of children with juvenile idiopathic arthritis

Not Applicable

Completed

• Conditions: Disease: All Diseases, Studies involving Children and Adolescents; Topic: Children, Musculoskeletal disorders; Subtopic: All Diagnoses, Musculoskeletal (all Subtopics); Juvenile idiopathic arthritis (JIA); Musculoskeletal Diseases

• Registration Number: ISRCTN13159730
• Lead Sponsor: City University London

Brief Summary

2020 Abstract results in http://dx.doi.org/10.1136/annrheumdis-2020-eular.3510 results presented at EULAR (added 14/09/2020) 2022 Results article in https://pubmed.ncbi.nlm.nih.gov/35551065/ (added 16/05/2022) 2024 Results article in https://doi.org/10.1093/rheumatology/keae188 Economic evaluation of a trial exploring the effects of a web-based support tool for parents of children with juvenile idiopathic arthritis (added 25/03/2024)

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2015-11-05
• Study Completion: 2019-09-30
• Last Update Posted: 8 April 2024

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 220

Inclusion Criteria

1. Parents of children who have been newly diagnosed (within 6 months) with JIA according to internationally agreed criteria (Int. League against Rheumatism ILAR)
2. Aged 18 years or over
3. Ability to understand written and spoken English

Exclusion Criteria

1. Identifiable psychosis or dementia in parents
2. Major problems with literacy making the completion of the questionnaires impossible
3. Too likely to be distressed by the study as judged by senior members of clinical staff

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Parental Stress is measured using the Paediatric Inventory for Parents (PIP) questionnaire at baseline, 4 and 12 months.