Multiprofessional Advance Care Planning and Shared Decision-making for End of Life Care MAPS Trial
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Palliative Patients
- Sponsor
- University of Zurich
- Enrollment
- 115
- Locations
- 1
- Primary Endpoint
- end of life wish on resuscitation known (if alive) or fulfilled(if dead) after 6 month by responsible physician and/or surrogate decision maker (SM)
- Status
- Completed
- Last Updated
- 9 years ago
Overview
Brief Summary
Multiprofessional Advance Care Planning and shared decision making for end of live care for terminal patients and their relatives.
The aim of this study is to develop, implement and test a complex intervention for improving patients' preparation for and participation in end of life decisions. In cooperation with local, national and international partners, the investigators will focus on strategies to enhance advance care planning and shared decision making on end of life issues, and documentation and transferability of end of life decisions across health care settings in coordinated approach involving patients, their families and care givers (in and out of hospital).
Investigators
Eligibility Criteria
Inclusion Criteria
- Not provided
Exclusion Criteria
- Not provided
Outcomes
Primary Outcomes
end of life wish on resuscitation known (if alive) or fulfilled(if dead) after 6 month by responsible physician and/or surrogate decision maker (SM)
Time Frame: during 2 weeks six months after discharge
Secondary Outcomes
- Any hospital stay(during 2 weeks three months after discharge and during 2 weeks six months after discharge)
- end of live decisions on last place of care, antibiotics for pneumonia, feeding tube, intravenous fluids, dialysis, intubation and sedation,(during 2 weeks six months after discharge)
- decisional conflict scale ("DCS"), O Connor et al 1995(at discharge and during 2 Weeks six months after discharge)
- Satisfaction with information and care, (see Detering et al 2010)(at discharge)
- Hospital Anxiety and Depression scale ("HADS")(discharge and during 2 weeks six months after discharge)
- Having an Advance directive(at discharge, during 2 weeks three months after discharge and during 2 weeks six months after discharge)
- Having an appointed surrogate decision maker(at discharge, during 2 weeks three month after discharge and during 2 weeks six month after discharge)
- open question on important medical decisions being made(during 2 weeks three months after discharge)
- Treatment against patients wishes(during 2 weeks three months after discharge and during 2 weeks six months after discharge, or 3 month after death)
- Distress of Patients or relatives because of content of the consultation(at discharge, during 2 weeks three months after discharge and during 2 weeks six months after discharge)
- Decisions regarding end of life issues already having been made/taken place(during 2 weeks six months after discharge)