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临床试验/NCT04106960
NCT04106960Unknown不适用

Quantitative Investigation of the Association Between the Social and Physical Features of the Environment and Participation for Those With Complex Mental Health Difficulties Living in Supported Accommodation

Queen Margaret University1 个研究点 分布在 1 个国家目标入组 235 人开始时间: 2020年1月17日最近更新:
适应症

试验速览

阶段
不适用
入组人数
235
试验地点
1
主要终点
Model of Human Occupation Screening Tool

研究概览

简要总结

Supported accommodation provides individuals with complex mental health difficulties the opportunity to maintain a tenancy with different levels of staff support provided to develop and maintain living skills and engage in social and work activities. Physical features of the place people live, the support they receive from staff and the individuals needs all have the potential to impact on their ability to engage in activities that enable then to have increasing independence within the community.

The study will investigate the relationship between the physical and social features of supported accommodation environments and whether this facilitates or inhibits people with complex mental health difficulties' participation in everyday life, relationships, pursuing interests and work. The study will also consider whether people's needs have an effect on the relationship between the environment and their participation. The study will analyse data collected using measures of clients' levels of participation, features of the supported accommodation environment and how needs mediates this relationship.

The aim is to inform ways of working with people with complex mental health difficulties in supported accommodation that increase opportunities for participation in the activities they need, want and enjoy doing.

详细描述

Mental illness is one of the main causes of disability and ill-health worldwide with severe mental illness linked to a reduced life expectancy of approximately 10-25 years. Individuals with complex mental health difficulties(CMHD) are those with severe mental illness whose conditions can result in social, cognitive and functional difficulties. These individuals possess the longest years lived with a disability and represent a large proportion of those disadvantaged or discriminated economically, socially and culturally. The impact of the social, cultural and physical environment on people with CMHD frequently resulting difficulties with participation which include isolation from friends, family and relevant services and higher levels of unemployment, subsequently, this restricts their participation in everyday roles and responsibilities. The lack of social interaction and constant low expectation of success projected onto individuals with CMHD also creates a loss of personal identity and reduces their ability to engage in activities they find meaningful. Therefore the relationship between the environment and an individual with CMHD's can be considered as dynamic, with the opportunity to participate in daily life, roles and responsibilities either being supported or restricted by the social, cultural and physical environment the person lives in.

Participation in activities that are meaningful to people with CMHD also enable them to meet their needs. Mental health needs include broad domains of health and social functioning which are essential to living and succeeding in the community. People with CMHD identify needs in relation to reframing their illness experience so they can do everyday things, having stable housing and a choice about where they live, having the ability to develop friendships, get married, earn money and have an increased sense of purpose or meaning to their day. Effectively identifying and addressing people with CMHD's needs has been linked to individual feelings of satisfaction and competence, motivation increased independence and having a greater quality of life. This introduces a link between participation and achievement of the health and social care needs of an individual where achievement of needs has been linked to increased participation in meaningful activities and improved social and emotional wellbeing.

A significant number of individuals with CMHD live in supported accommodation which aims to meet their needs and facilitate participation in daily living, social and work activities. Supported accommodation was originally developed as a result of deinstitutionalisation, which focused on moving individuals with CMHD out of hospital to live back in the community. Supported accommodation provides individuals with CMHD the opportunity to maintain a tenancy with different levels of staff support provided to develop and maintain living skills and engage in social and work activities. There is some evidence that the physical features of the place people live, and the objects or things that people require to participate in daily life and social features including the support they receive from support staff and family members have an impact on people with CMHD's opportunities to participate in activities that enable them to have increasing independence within the community. There is therefore evidence that the needs of individuals with CMHDs are associated with their level of participation in activities which in turn is influenced by environmental factors within supported accommodation. However, there is limited research available to confirm the relationship between the physical and social features of the environment and participation and the mediating effect of needs for people with CMHD living in supported accommodation.

The research will focus on identifying the relationships between environment and participation and if needs mediates this relationship within two types of supported accommodation;

  1. Supported housing: tenancies in shared living with staff based on-site up to 24 hours a day. The focus is on rehabilitation, with people with CMHD supported to gain independent living skills.
  2. Floating outreach services: provide support to people with CMHD living in their own self-contained tenancy. Staff are based off-site and visit individuals several times a week dependant on level of support required.

研究设计

研究类型
Observational
观察模型
Case Only
时间视角
Cross Sectional

入排标准

年龄范围
16 Years 至 —(Child, Adult, Older Adult)
性别
All
接受健康志愿者

入选标准

  • Aged over 16 years
  • English-speaking clients
  • Clients with diagnoses in the following ICD-10 categories
  • F20-29 (Schizophrenia, schizotypal and delusional disorders)
  • F30-39 (Mood affective disorders)
  • F60-69 (Disorders of adult personality and behaviour)
  • Clients currently residing in one of the following types of supported accommodation
  • Supported housing
  • Floating outreach services

排除标准

  • Primary diagnosis of learning disability as identified by staff members
  • Clients who are currently experiencing acute phase of illness as advised by service manager or receiving treatment from the Intensive Home Treatment Team

结局指标

主要结局

Model of Human Occupation Screening Tool

时间窗: Assessment is an interview that takes approximately 45 minutes.

Measure of level of Participation. Participation is measured through 6 domains of Motivation for Occupation, Pattern of Occupation, Communication and interaction skills, Process skills, Motor skills and Environment. Each domain consists of 4 sub-domains whose scores will be combined. For the purpose of this study the researcher will exclude the environment domain as this would be measured by the REIS mentioned below. The domains are rated on a 4-point scale of F, A, I, R where they stands for Facilitates occupational participation, Allows occupational participation, Inhibits participation and Restricts occupational participation. Dependant on the regression model, the researcher will use both combined total scores as well as scores of specific domains and sub-domains.

Residential Environment Impact Scale

时间窗: Assessment is done through three stages: a walk-around the property (15 minutes), interview with staff/staff group (30-40 minutes), interview with clients (20-45 minutes).

Measure to assess the Environment and built for supportive environments. The REIS consists of 4 domains of Everyday Space, Everyday Objects, Enabling relationships and Structure of Activities; each domain possesses 5 sub-domains. It consists of a 4-point ordinal scale of 1,2,3,4 where 1 refers to the Environment STRONGLY INTERFERES with people's sense of identity \& competence by NOT PROVIDING OPPORTUNITIES, resources, demands and constraints to engage in meaningful culturally appropriate activities. Similarly 2 stands for Interferes with by providing limited opportunity, 3 stands for supports by providing opportunities and 4 stands for strongly supports by providing exceptional opportunities. Dependant on the regression model, the researcher will use both combined total scores as well as scores of specific domains and sub-domains.

次要结局

  • Camberwell Assessment of Need Short Appraisal Scale(Interviews take approximately 30 minutes.)

研究者

申办方类型
Other
责任方
Principal Investigator
主要研究者

Akkara Lionel Jose

PhD Student

Queen Margaret University

研究点 (1)

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