Understanding The Challenges and Concerns Faced by Parents of Children With Cleft Lip and/or Palate: A Qualitative Study
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Cleft Lip and Palate
- Sponsor
- Ain Shams University
- Enrollment
- 12
- Locations
- 1
- Primary Endpoint
- Challenges & concerns faced by the parents of CLP patients
- Status
- Completed
- Last Updated
- 2 years ago
Overview
Brief Summary
Cleft lip and/or palate (CLP) are the most common oro-facial congenital anomalies. These anomalies have an impact on feeding, speech and speech development, facial aesthetics & oral health, all of which are factors that heavily impact the quality of life of CLP patients. CLP also has an effect on the families' social and psychological health.
Qualitative research helps understand the perspectives of the participants by exploring the psycho-social aspects of care. Phenomenological approach is a qualitative research method that aims to borrow participants' lived experiences to better understand a specific phenomenon. Currently, there is no clear understanding of the fears, anxieties, and challenges faced by parents of CLP patients in Egypt.
Investigators
Alaa Mohammed Yehia
Assistant Lecturer at Pediatric Dentistry and Dental Public Health Department, Faculty of Dentistry
Ain Shams University
Eligibility Criteria
Inclusion Criteria
- •Parents of Patients with non-syndromic CLP.
Exclusion Criteria
- •Parents of Patients presenting with dental pain.
Outcomes
Primary Outcomes
Challenges & concerns faced by the parents of CLP patients
Time Frame: 1 year
The tool of measurement in the present qualitative study is In-depth interviews utilizing an interview guide (questionnaire). The recorded interviews will be transcribed by one of the authors after which thematic data analysis will be conducted. Codes will be developed by two researchers individually and intercoder meetings will held to encourage intercoder reliability.