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Clinical Trials/CTRI/2021/08/036053
CTRI/2021/08/036053
Not yet recruiting
未知

A Study of Psychological Impact in Caregivers of Persons with Childhood Onset Gaucher Disease

Seth GS Medical College and KEM Hospital0 sites0 target enrollmentTBD

Overview

Phase
未知
Intervention
Not specified
Conditions
Not specified
Sponsor
Seth GS Medical College and KEM Hospital
Status
Not yet recruiting
Last Updated
4 years ago

Overview

Brief Summary

No summary available.

Registry
who.int
Start Date
TBD
End Date
TBD
Last Updated
4 years ago
Study Type
Observational

Investigators

Sponsor
Seth GS Medical College and KEM Hospital

Eligibility Criteria

Inclusion Criteria

  • Consenting parents of patients
  • 1\. With a confirmed diagnosis of Gaucher disease (enzyme activity ± molecular study) in childhood,
  • 2\. On treatment for Gaucher disease (Enzyme replacement therapy or Substrate Reduction Therapy) for at least one year or treatment naïve Gaucher disease.

Exclusion Criteria

  • 1\. Parents with a chronic disease or those caring for another family member with a chronic disease
  • 2\. Parents with a background of psychiatric illness or addictions (e.g. alcoholism)

Outcomes

Primary Outcomes

Not specified

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