NL-OMON54827
Recruiting
Not Applicable
Parent-child relationship, cognitive development and social-emotional functioning in children with intestinal failure;(PICASsO-study = Pediatric Intestinal failure: Cognitive And Social-emotional Outcomes) - PICASsO-study
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- intestinal failure / chronic intestinal failure
- Sponsor
- Erasmus MC, Universitair Medisch Centrum Rotterdam
- Enrollment
- 116
- Status
- Recruiting
- Last Updated
- 2 years ago
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •1\. Children known with intestinal failure, who receive parenteral nutrition at
- •home and therefore (regularly) visit the outpatient clinic of the
- •multidisciplinary intestinal failure team of the Erasmus MC Sophia Children\*s
- •Hospital (Rotterdam) or Amsterdam UMC Emma Children's Hospital (Amsterdam).
- •2\. Children previously dependent on parenteral nutrition at home in the past
- •and now still visiting the outpatient clinic of the multidisciplinary
- •intestinal failure team or the CHIL (surgical long term follow up) of the
- •Erasmus MC Sophia Children\*s Hospital for feeding difficulties or regular
Exclusion Criteria
- •\- Participation in an intervention study, interfering with the primary outcome
- •of this study
- •\- Absence of written informed consent
- •\- Insufficient knowledge of the Dutch language of the parents/caregivers and
- •participants (if older than 12 years)
Outcomes
Primary Outcomes
Not specified
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