Cologne Care Research and Development Network: An interdisciplinary learning network towards value-based care for vulnerable patients

• Conditions: Death - across indications (LYOL-C); I25; F32; F40; Chronic ischaemic heart disease; Depressive episode; Phobic anxiety disorders

• Registration Number: DRKS00011925
• Lead Sponsor: IMVR der Universität zu Köln

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2017-06-13
• Study Completion: 2019-10-01
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Complete
• Sex: All
• Target Recruitment: 1188

Inclusion Criteria

MenDis-CHD:
1.) Adults with clinical manifest coronary heart disease (i. e. status post stable or unstable angina pectoris, acute coronary syndrome, after percutaneous coronary intervention and bypass surgery). Approx. 50% of the total patient population shall be female. Approx. 30% shall have a left ventricular ejection volume of = 40% and thus have a cardiac insufficiency (Curtis et al., 2003).
2.) Relatives of these patients.

LYOL-C:
1.) The bereaved of patients who had been cared for within the region of Cologne and have deceased.
To the group of the bereaved, all relatives and close people are considered who cared for the respective patient and/or stood by his/her side during the last year of life.

OrgValue:
1.) Employees or decision-makers of a health care organization in Cologne.
2.) Patients in Cologne

All Studies:
1.) Subjects must be a German native-speaker or have adequate langue proficiency in German (incl. reading ability).
2.) Minimum age 18 years
3.) Written consent to the participation in the study

Exclusion Criteria

1.) under 18 years of age
2.) insufficient german language knowledge
3.) profoundly instable physical and mental status
4.) missing or withdrawn consent form

LYOL-C:
1.) no direct participation in the provision of care during the last year of life
2.) Accident or man-induced death

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
- care trajectories of vulnerable patient groups<br>-degree of value-based and patientcentered care from the patients and relatives view<br>-quality of care from the patients perspective<br>-identification of hindering as well as facilitating factors in the delivery of value-based and patient-centered care within the organisations