Optimal care for Duchenne and Becker muscular dystrophy: Learning, behavior and careful care
- Conditions
- DMD&BMDDuchenne and Becker muscular dystrophyDystrophinopathy1002830210009841
- Registration Number
- NL-OMON46818
- Lead Sponsor
- eids Universitair Medisch Centrum
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- Not specified
- Target Recruitment
- 131
Inclusion Criteria
- Progressive muscle weakness
- Confirmed diagnosis of dystrophinopathy: defined mutation in the dystrophin gene and / or either reduced or lack of dystrophin levels in a muscle biopsy
- Age > 4 years
- Dutch as mother tongue
Exclusion Criteria
- No informed consent
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method