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Clinical Trials/NCT04519853
NCT04519853
Completed
Not Applicable

A Pilot Study to Test the Safety and Tolerability of a Low Glycemic Load Dietary Intervention in Adults With Cystic Fibrosis

Boston Children's Hospital1 site in 1 country11 target enrollmentOctober 25, 2021

Overview

Phase
Not Applicable
Intervention
Not specified
Conditions
Cystic Fibrosis
Sponsor
Boston Children's Hospital
Enrollment
11
Locations
1
Primary Endpoint
Change in percent time <54 mg/dL
Status
Completed
Last Updated
2 years ago

Overview

Brief Summary

This pilot study will evaluate the safety and tolerability of a low glycemic load dietary intervention in adult patients with cystic fibrosis (CF) in a rigorous feeding study. Specific emphasis will be placed on changes in weight, body composition, and glycemic measures obtained via continuous glucose monitor (CGM) usage.

Detailed Description

Non-pulmonary complications of cystic fibrosis (CF) are becoming increasingly prevalent with the changing landscape of CF care. CF related diabetes mellitus (CFRD) and CF related gastrointestinal (GI) complications have significant effects on morbidity and mortality. Treatment options are limited to insulin therapy for CFRD and symptom control for most GI complications. BMI is a well-established marker of morbidity and mortality in patients with CF. Many patients consume a high carbohydrate intake to meet their increase caloric needs, potentially leading to complications including post-prandial hyperglycemia, increased inflammation, and abnormal GI motility. Dietary recommendations for children and adults with CF are limited and based entirely on consensus and expert opinion. As patients with CF live longer with highly effective modulator therapy, it is important to understand the effects of dietary composition on short and long-term endocrine, GI, and pulmonary outcomes. The investigators will conduct a prospective, open-label pilot study in adults with CF and impaired glucose tolerance or indeterminate glycemia to establish the safety and tolerability of a low glycemic load (LGL) diet. Subjects will initially follow their standard diet for a 2-week run-in period, then transition to a LGL diet provided by a food delivery service for the remaining 8 weeks. The investigators will also investigate potential short-term outcomes of dietary carbohydrate manipulation, including glycemic variability measured by continuous glucose monitor (CGM), body composition via DXA, GI symptoms, and quality of life measures. The investigators hypothesize that a diet lower in carbohydrate content will be safe, tolerable, and associated with weight maintenance or gain, and that a LGL diet will result in decreased glycemic variability via CGM, improved GI symptoms, increased lean to fat mass ratio, and improved quality of life measures over an 8-week period.

Registry
clinicaltrials.gov
Start Date
October 25, 2021
End Date
July 1, 2023
Last Updated
2 years ago
Study Type
Interventional
Study Design
Single Group
Sex
All

Investigators

Responsible Party
Principal Investigator
Principal Investigator

Melissa Putman

Assistant Professor of Pediatrics, Attending in Endocrinology

Boston Children's Hospital

Eligibility Criteria

Inclusion Criteria

  • Diagnosis of CF
  • Diagnosis of pancreatic insufficiency, requiring pancreatic enzyme replacement
  • Oral glucose tolerance test within the past three years showing impaired glucose tolerance (2-hour glucose ≥140 mg/dL) or indeterminate glycemia (1-hour glucose ≥200), HbA1c 5.7-6.4% in the past one year, and/or or documented random glucose ≥200 in the past one year
  • BMI 21-25 kg/m2
  • 18 years and above

Exclusion Criteria

  • Current use of insulin
  • Most recent HbA1c ≥6.5%
  • History of solid organ transplant or currently listed for solid organ transplant
  • FEV1 \<50% predicted on most recent pulmonary function testing
  • Currently receiving enteral nutrition support
  • Current or anticipated pregnancy in the next 1 year
  • Hospitalization for CF exacerbation within 1 month of enrollment
  • Started or stopped treatment with Trikafta or other CFTR modulator within 3 months of enrollment
  • Currently adhering to a low glycemic index or other carbohydrate restricted diet

Outcomes

Primary Outcomes

Change in percent time <54 mg/dL

Time Frame: Baseline and 10 weeks

Continuous glucose monitoring

Change in weight from baseline and 10 weeks

Time Frame: Baseline and 10 weeks

Anthropometric measure

Patient reported tolerability of dietary intervention, Likert scale

Time Frame: Single measurement at 10 weeks after diet completion

Single Likert scale question of overall diet tolerability, ranging from 1 (intolerable) to 10 (completely tolerable)

Secondary Outcomes

  • Change in percent time 70-180 mg/dL on CGM(Baseline to 10 weeks)
  • Change in percent time greater than >250 mg/dL on CGM(Baseline to 10 weeks)
  • Change in Patient Assessment of Constipation (PAC) questionnaire score(Baseline and 10 weeks)
  • Change in percent time >140 mg/dL(Baseline to 10 weeks)
  • Change in percent time greater than 180 mg/dL on CGM(Baseline to 10 weeks)
  • Change in lean and fat mass(Baseline and 10 weeks)
  • Change in erythrocyte sedimentation rate (ESR)(Baseline and 10 weeks)
  • Change in percent time less than 70 mg/dL on CGM(Baseline to 10 weeks)
  • Change in CGM coefficient of variation (CV)(Baseline to 10 weeks)
  • Change in percent time less than 50 mg/dL on CGM(Baseline to 10 weeks)
  • Change in Modified Activity Questionnaire (MAQ) score(Baseline and 10 weeks)
  • Change in intestinal fatty acid binding protein (I-FABP)(Baseline and 10 weeks)
  • Change in CGM average glucose(Baseline to 10 weeks)
  • Change in CGM glucose management indicator (GMI)(Baseline to 10 weeks)
  • Change in CGM standard deviation (SD)(Baseline to 10 weeks)
  • Number of episodes of symptomatic hypoglycemia(Baseline and 10 weeks)
  • Change in Patient Assessment of Gastrointestinal Symptom (PAGI-SYM) questionnaire score(Baseline and 10 weeks)
  • Change in Cystic Fibrosis Questionnaire Revised (CFQ-R) score(Baseline and 10 weeks)
  • Change in c-reactive protein (CRP)(Baseline and 10 weeks)

Study Sites (1)

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