Diagnosis and Experiences From Women With ADHD; an International Survey
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 5,893
- 试验地点
- 1
- 主要终点
- To describe the overall experiences, thoughts, and perspectives of women with ADHD, including domains of ADHD diagnosis and symptoms, ADHD and other health conditions, menstrual cycle, conflict tactics and romantic relationships, and sleep.
研究概览
简要总结
The goal of this exploratory study following a cross-sectional online survey in women with ADHD is to
- describe overall experiences regarding ADHD symptoms, diagnosis, treatment, sources of support, and any perceived barriers on those domains;
- determine which life domains are most affected by ADHD symptoms;
- calculate the prevalence of reported health conditions within the following domains: circulatory system, endocrine or metabolic system, gastrointestinal system, genitourinary system, musculoskeletal system, nervous system, respiratory system, skin, reproductive system, cancer, psychiatric conditions, COVID-19, sensory sensitivity, menstrual cycle, and sleep;
- identify topics that women with ADHD would like to see studied in future research.
详细描述
Rationale: In clinical practice, the investigators see that ADHD affects women differently than men. It has become clear that a better understanding of ADHD in girls and women is needed to improve their longer-term wellbeing and functional and clinical outcomes.
Objective: The primary endpoint is to describe the overall experience of women with ADHD regarding ADHD symptoms, diagnosis, treatment, and any perceived barriers relating to these domains. The investigators also want to determine the effects of ADHD symptoms on day-to-day life across various life domains. Moreover, the investigators want to determine the prevalence of reported health conditions.
Study design: This is an exploratory study following a cross-sectional online survey.
Study population: Women (aged >18 years) with ADHD.
Intervention (if applicable): Not applicable.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- Female
- 接受健康志愿者
- 否
入选标准
- •Identify as a woman
- •Aged 18 or above
- •Have ADHD (both diagnosed by a health professional and self-diagnosed)
排除标准
- •People who are not able to read, understand, or sign the information letter or informed consent form are excluded from participation.
结局指标
主要结局
To describe the overall experiences, thoughts, and perspectives of women with ADHD, including domains of ADHD diagnosis and symptoms, ADHD and other health conditions, menstrual cycle, conflict tactics and romantic relationships, and sleep.
时间窗: 50 minutes
A self-developed questionnaire. The sections on demographic information, ADHD diagnosis, ADHD diagnosis \& symptoms and menstrual cycles are constructed for the purpose of this survey. Moreover, the questionnaire contains sections from the Ultrashort screener for adult ADHD, the Holland Sleep Disorder Questionnaire and the Conflict Tactics scale 2.
次要结局
- To identify topics for further research and ways of improving healthcare (e.g. the diagnostic process or effective treatment) for women with ADHD(50 minutes)
研究者
Danielle de Graaf
Principal investigator
Parnassia Groep