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Phase IV EORTC Quality of Life Module for Patients With Chronic Myeloid Leukemia

Conditions
Chronic Myeloid Leukemia
Registration Number
NCT03075969
Lead Sponsor
Gruppo Italiano Malattie EMatologiche dell'Adulto
Brief Summary

The objective of this study is to test the scale structure, reliability, validity and responsiveness to change of the QLQ-CML24 in conjuction with the QLQ-C30 for patients diagnosed with CML, and to investigate longitudinal relationship between satisfaction with information provision and QoL outcomes.

Detailed Description

Not available

Recruitment & Eligibility

Status
UNKNOWN
Sex
All
Target Recruitment
337
Inclusion Criteria
  • Above 18 years of age.
  • Patient with confirmed diagnosis of Philadelphia chromosome positive and/or BCR-ABL positive chronic myeloid leukemia (CML).
  • Written informed consent.
  • Patients enrolled in investigational drug-trials or other type of clinical trials are also eligible.
Read More
Exclusion Criteria
  • Patients with a psychiatric condition or major cognitive impairment (as evaluated by their treating physician) that would hinder completion of self-reported health-related QoL questionnaires.
  • Patients who are unable to speak and read the language of the questionnaire.
Read More

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
The primary objective of the study is to test the scale structure, reliability, validity and responsiveness to change of the QLQ-CML24 in conjunction with the QLQ-C30 for patients diagnosed with CML.18 months from enrollment
Secondary Outcome Measures
NameTimeMethod
The secondary objective is to investigate longitudinal relationship between satisfaction with information provision (outcome measure: EORTC INFO-25) and QoL outcomes (outcome measures: EORTC QLQ-C30 and QLQ-CML24).18 months from enrollment

Trial Locations

Locations (32)

Innsbruck Medical University

🇦🇹

Innsbruck, Austria

Winship Cancer Institute of Emory University

🇺🇸

Emory, Georgia, United States

Guangdong Medical University

🇨🇳

Guangdong, China

Universität Heidelberg

🇩🇪

Heidelberg, Germany

Baghdad Teaching Hospital

🇮🇶

Baghdad, Iraq

Azienda Ospedaliero - Universitaria Ospedali Riuniti Umberto I - G.M. Lancisi - G. Salesi

🇮🇹

Ancona, Italy

Department of Oncology and Hematology, O.U. of Hematology, S. Orsola-Malpighi University Hospital, Bologna

🇮🇹

Bologna, Italy

Azienda Ospedaliero-Universitaria Policlinico Consorziale

🇮🇹

Bari, Italy

Sezione di Ematologia e Trapianti Spedali Civili

🇮🇹

Brescia, Italy

CTMO - Ematologia - Ospedale Binaghi

🇮🇹

Cagliari, Italy

Dipartimento di Oncologia ed Ematologia - AUSL Ospedale G. da Saliceto

🇮🇹

Piacenza, Italy

Divisione di Ematologia - Ospedale S.Eugenio

🇮🇹

Roma, Italy

Unità Operativa Complessa di Ematologia - Arcispedale S. Maria Nuova

🇮🇹

Reggio Emilia, Italy

U.O. di Ematologia - Casa Sollievo della Sofferenza

🇮🇹

San Giovanni Rotondo, Italy

U.O di Ematologia d. U. - Azienda Ospedaliera Universitaria Integrata Verona

🇮🇹

Verona, Italy

Ospedale San Bortolo

🇮🇹

Vicenza, Italy

Divisione Ematologia - Università Campus Bio-Medico

🇮🇹

Roma, Italy

U.O. Ematologia 1 - Centro Trapianti di Midollo - Ospedale Maggiore Milano

🇮🇹

Milano, Italy

Dipartimento Oncologico - Ospedale S.Maria delle Croci

🇮🇹

Ravenna, Italy

Divisione clinicizzata di Ematologia - Dipartimento di Scienze Mediche - Osp. Ferrarotto

🇮🇹

Catania, Italy

Clinica Ematologica - Dipartimento di Medicina Interna - IRCCS San Martino - IST

🇮🇹

Genova, Italy

Lecce ASL Le/1 P.O. Vito Fazzi - U.O. di Ematologia ed UTIE

🇮🇹

Lecce, Italy

Complexo Hospital de Clinicas da Universidade Federal do Parana

🇧🇷

Paranã, Brazil

UCSI University, Faculty of Pharmaceutical Sciences

🇲🇾

Kuala Lumpur, Malaysia

Università Cattolica del Sacro Cuore - Policlinico A. Gemelli

🇮🇹

Roma, Italy

Divisione di Ematologia - Dip. Di Medicina Clinica e Sperimentale & BRMA - Università Piemonte Orientale "Amedeo Avogato"

🇮🇹

Novara, Italy

Ematologia - AOU Sassari

🇮🇹

Sassari, Italy

U.O.C. di Ematologia e CTMO Az. Ospedaliero Universitaria Parma

🇮🇹

Parma, Italy

Azienda Ospedaliera Universitaria - Policlinico Paolo Giaccone

🇮🇹

Palermo, Italy

Div. di Ematologia IRCCS Policlinico S. Matteo

🇮🇹

Pavia, Italy

Clinica di Ematologia - Policlinico Umberto I- Università degli Studi "Sapienza"

🇮🇹

Roma, Italy

Eindhoven and Tilburg University

🇳🇱

Eindhoven, Netherlands

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