MedPath

Pharmacokinetics and Safety Profile of Digoxin in Infants With Single Ventricle Congenital Heart Disease

Completed
Conditions
Congenital Heart Disease
Interventions
Registration Number
NCT03877965
Lead Sponsor
Christoph P Hornik, MD MPH
Brief Summary

This is a prospective, multi-center, open-label, PK and safety profile study of enteral digoxin in children \<6 months old at time of enrollment, post-surgical or hybrid stage 1 palliation, but prior to surgical stage 2 palliation.

Detailed Description

The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) funded this protocol titled "Pharmacokinetics and Safety Profile of Digoxin in Infants with Single Ventricle Congenital Heart Disease", protocol number NICHD-2018-DGX01. The Investigational New Drug (IND) Sponsor and Principal Investigator for this protocol is Christopher P. Hornik, MD, MPH. The Contracting Officer's Technical Representative (COTR) to represent the Government for this task order is Perdita Taylor-Zapata. The Duke IRB number for this study is Pro00102130. This study employs a central IRB, the WIRB-Copernicus Group (WCG). The c-IRB (WCG) study number is 20190888 / NICHD-2018-DGX01.

This is a prospective, multicenter Phase 1 study with a primary objective to characterize the pharmacokinetics of enteral digoxin in infants with single ventricle congenital heart disease. The secondary objective is to determine the safety profile of enteral digoxin in infants with single ventricle congenital heart disease. Digoxin is used for the treatment of heart failure in pediatric patients and acts by controlling numerous functions of the cardiovascular system. Digoxin use in single ventricle congenital heart disease may decrease interstage mortality.

The study will be conducted in approximately 48 subjects at approximately 13 investigational centers. The proposed duration of the study is approximately 196 (±) days.

Please see the protocol and synopsis for more information.

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
50
Inclusion Criteria
  • Diagnosis of single ventricle congenital heart disease
  • Status post-surgical or hybrid stage 1 palliation but prior to surgical stage 2 palliation
  • Age ≤ 30 days of life at time of stage 1 palliation
  • Age < 6 months at time of enrollment
  • Require treatment with enteral digoxin per their treating medical provider if their planned maintenance treatment dosing regimen is within the labeled dose range of 7.5 - 20 mcg/kg/day divided in 2 or 3 equal doses
  • Informed consent from parent(s) or legal guardian(s)
Exclusion Criteria
  • Serum creatinine > 2 mg/dL at enrollment
  • Diagnosis of second degree or higher atrioventricular conduction block at enrollment
  • Diagnosis of clinically significant sinus bradycardia requiring intervention at enrollment
  • Known hypersensitivity to digoxin or other forms of digitalis
  • Extracorporeal life support (i.e., ECMO, dialysis, ventricular assist device) at enrollment
  • Received digoxin prior to enrollment
  • Received or anticipated to receive a loading dose of digoxin.
  • Any condition that would make the participant, in the opinion of the investigator, unsuitable for the study

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
Children with single ventricle congenital heart diseaseDigoxinReceiving digoxin per standard of care during the interstage period
Primary Outcome Measures
NameTimeMethod
Plasma concentrations of digoxinApproximately 7 months

The primary outcome measures are plasma concentrations of digoxin measured using a validated bioanalytical assay at a central laboratory.

Secondary Outcome Measures
NameTimeMethod
QRS durationApproximately 7 months

Derived from electrocardiograms and their reports performed per standard of care

Number of participants with second and third degree atrioventricular conduction blockApproximately 7 months
PR intervalApproximately 7 months

Derived from electrocardiograms and their reports performed per standard of care

Number of adverse events related to study procedures and serious, unexpected, suspected adverse reactions related to digoxinApproximately 7 months

1. Adverse events (AEs) related to the study procedures (blood draws and outcome assessments), and serious, unexpected, suspected adverse reactions (SUSARs) related to digoxin will be captured.

Number of participants with sinus bradycardiaApproximately 7 months

Number of participants with sinus bradycardia

TachyarrthmiasApproximately 7 months

Event of special interest will be captured (number of tachyarrythmias)

Number of participants with need for temporary or permanent pacingApproximately 7 months

Number of participants with need for temporary or permanent pacing

Frequency of deathApproximately 7 months

Frequency of death

QT intervalApproximately 7 months

Derived from electrocardiograms and their reports performed per standard of care

Corrected QT interval using Bazett's formulaApproximately 7 months

Derived from electrocardiograms and their reports performed per standard of care

Trial Locations

Locations (11)

Nicklaus Children's Hospital

🇺🇸

Miami, Florida, United States

Morgan Stanley Children's Hospital of New York Presbyterian

🇺🇸

New York, New York, United States

The Children's Hospital Colorado

🇺🇸

Aurora, Colorado, United States

Alfred I. DuPont Hospital for Children

🇺🇸

Wilmington, Delaware, United States

St. Louis Children's Hospital

🇺🇸

Saint Louis, Missouri, United States

Rady Childrens Hospital and Health Center

🇺🇸

San Diego, California, United States

Duke University Medical Center

🇺🇸

Durham, North Carolina, United States

Mattel Children's Hospital at UCLA

🇺🇸

Los Angeles, California, United States

Children's Memorial Hermann Hospital

🇺🇸

Houston, Texas, United States

Cincinnati Childrens Hospital Medical Center

🇺🇸

Cincinnati, Ohio, United States

Medical University of South Carolina

🇺🇸

Charleston, South Carolina, United States

© Copyright 2025. All Rights Reserved by MedPath