Empowering Elderly Patients to Establish their own Goals of CareA pilot Study in the Emergency Department

Not Applicable

• Conditions: Advanced chronic disease; Frailty; Reattendances to Hospital Emergency Departments; non-beneficial (futile) treatments; Cardiovascular - Other cardiovascular diseases; Respiratory - Chronic obstructive pulmonary disease; Neurological - Dementias; Renal and Urogenital - Kidney disease

• Registration Number: ACTRN12617001441303
• Lead Sponsor: South Western Sydney Clinical School, UNSW

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2017-10-11
• Study Completion: 2018-07-31
• Last Update Posted: 20 June 2022

Recruitment & Eligibility

• Status: Stopped early
• Sex: All
• Target Recruitment: 419

Inclusion Criteria

Older people aged 80+ years presenting at emergency department and being admitted for at least one night and able to provide written consent to enable data linkage and follow-up telephone call at one and 3 months.

Exclusion Criteria

-Unable to communicate in English unless an interpreter or relative available.
-No surrogate present (in case of cognitive impairment or non-English speaking background)
-CriSTAL score of less than 6

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Re-admission rates as determined by electronic records[within 3 months of initial assessment in emergency department the evaluation team will check the above outcome];Emergency Department re-attendances extracted from electronic records[Within 3 months of initial assessment in emergency department the evaluation team will check the above outcome];Proportion of patients formalising advance care directives during hospitalisation or post-discharge, as determined by self-report at the follow-up call[within 3 months of initial assessment in emergency department the evaluation team will check the above outcome]

Secondary Outcome Measures

Name	Time	Method
Proportion of patients/families satisfied with care received as determined by self-report at the follow-up call[one and three months];Proportion of patient/surrogates refusing participation or withdrawing (acceptability) as determined by review of the recruitment logs[Refusal and withdrawals will be available at Baseline and at 3 months post-initial assessment at completion of follow-up.];Proportion of patients where treatment received is aligned with wishes expressed in the Goals of Care conversation. This information is part of the follow-up questionnaire specifically designed for this study. If there is opportunity for data linkage we will also check the hospital records to determine treatment received.[Within 3 months of initial assessment in the emergency department];ED Staff satisfaction with the new model of service as measured by an in-depth interview purpose-designed for this study[At the end of the data collection (follow-up period) ]