ACTRN12621001114831
Recruiting
N/A
The mental health and wellbeing of parents of children with and without developmental disabilities in Aotearoa New Zealand
A/Prof. Laurie McLay0 sites75 target enrollmentAugust 23, 2021
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Mental health
- Sponsor
- A/Prof. Laurie McLay
- Enrollment
- 75
- Status
- Recruiting
- Last Updated
- 4 years ago
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •(1\) caregiver of a child 18 years of age or under
- •(2\) access to iOS/Android phone with wifi or data connection
- •(3\) reside in New Zealand
- •(4\) primary language spoken in the home is English.
- •Additional inclusion criteria will apply to sub\-groups:
- •(1\) We aim for 25/75 participants to be caregivers of a child with a formal diagnosis of autism spectrum disorder, provided by an appropriate healthcare professional (e.g., developmental paediatrician)
- •(2\) 25/75 participants will be caregivers of a child with a Rare Genetic Neurodevelopmental Disorder (RGND), determined by a medical professional (e.g., developmental paediatrician). For the purpose of this study, RGND are defined as a group of syndromes
- •characterized by an abnormal structure and number of chromosomes \[Davis et al., 2018]. A disorder is considered ‘rare’ if it affects \<1/2,000 of the general population \[European Commission, 2018].
- •(3\) 25/75 participants will be caregivers of a child without a known developmental disorder.
Exclusion Criteria
- Not provided
Outcomes
Primary Outcomes
Not specified
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