The mental health and wellbeing of parents of children with and without developmental disabilities in Aotearoa New Zealand

A/Prof. Laurie McLay0 个研究点目标入组 75 人开始时间: 2021年8月23日最近更新: 2021年8月30日

适应症

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•(1) caregiver of a child 18 years of age or under
•(2) access to iOS/Android phone with wifi or data connection
•(3) reside in New Zealand
•(4) primary language spoken in the home is English.
•Additional inclusion criteria will apply to sub-groups:
•(1) We aim for 25/75 participants to be caregivers of a child with a formal diagnosis of autism spectrum disorder, provided by an appropriate healthcare professional (e.g., developmental paediatrician)
•(2) 25/75 participants will be caregivers of a child with a Rare Genetic Neurodevelopmental Disorder (RGND), determined by a medical professional (e.g., developmental paediatrician). For the purpose of this study, RGND are defined as a group of syndromes
•characterized by an abnormal structure and number of chromosomes [Davis et al., 2018]. A disorder is considered ‘rare’ if it affects <1/2,000 of the general population [European Commission, 2018].
•(3) 25/75 participants will be caregivers of a child without a known developmental disorder.

发起方

A/Prof. Laurie McLay