Development of a Culturally Tailored Resilience-building Intervention for Chinese American's Advance Care Planning Discussions

Not Applicable

Recruiting

• Conditions: Advance Care Planning; Heart Diseases; Neoplasms

• Registration Number: NCT06247215
• Lead Sponsor: University of Illinois at Chicago

Brief Summary

Less than 15% of Chinese Americans complete advance directives. That is less than half of the 37% completion rate in the US general population. This disparity in the use of advance care planning between White Americans and Chinese Americans may extend to disparities in end-of-life care. To address such disparities in end-of-life care, we will develop and assess the acceptability of a culturally tailored resilience-building intervention to help Chinese Americans with cancer or heart disease and their family caregivers engage in advance care planning discussions.

Detailed Description

The overall objective of this cross-sectional pilot study is to develop a culturally tailored resilience-building intervention for Chinese Americans with cancer or heart disease in Chicago. A qualitative analysis of semi-structured interviews will be conducted to identify how religious leaders addressed death-related topics with Chinese Americans with cancer or heart disease in Chicago. In addition, a usability test of a resilience-building intervention prototype will be conducted to to understand the feasibility and acceptability among 18 pairs of Chinese Americans and their family caregivers (9 pairs with cancer and 9 pairs with heart disease).

Study Timeline

• Study Start: 2023-11-08
• Study First Submitted: 2024-01-30
• Study First Submitted QC: 2024-01-30
• Study First Posted: 2024-02-07
• Status Verified: 2024-11
• Last Update Submitted: 2025-01-17
• Last Update Posted: 2025-01-20
• Primary Completion: 2025-06-30
• Study Completion: 2025-06-30

Recruitment & Eligibility

• Status: RECRUITING
• Sex: All
• Target Recruitment: 36

Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

• Study Type: INTERVENTIONAL
• Study Design: SINGLE_GROUP

Primary Outcome Measures

Name	Time	Method
Acceptability	Immediately at the end of the usability testing	The Theoretical Framework of Acceptability, which ranges from 1 to 5, will be used to assess acceptability. A higher score indicates higher acceptability.

Trial Locations

Locations (1)

University of Illinois Chicago; 🇺🇸 Chicago, Illinois, United States