Development of a Culturally Tailored Resilience-building Intervention for Chinese American's Advance Care Planning Discussions

Not Applicable

Terminated

• Conditions: Advance Care Planning

• Registration Number: NCT06247215
• Lead Sponsor: University of Illinois at Chicago

Brief Summary

The goal of this observational study is to learn about how Chinese Americans engage in advance care planning discussions with their family caregivers.

The main questions it aims to answer are:

1. How do religious leaders discuss advance care planning and death-related topics with Chinese Americans who are diagnosed with cancer or heart disease in Chicago?

2. Are Chinese Americans living in Chicago ready to participate in ACP discussions with their family?

3. What kind of support and resources are required to engage in end-of-life care discussions among Chinese Americans/immigrants living in Chicago?

Participants will share their experience either through interviews or a survey.

Detailed Description

The overall objective of this pilot study is to develop a culturally tailored resilience-building intervention for Chinese Americans with cancer or heart disease in Chicago. A qualitative analysis of semi-structured interviews will be conducted to identify how religious leaders addressed death-related topics with Chinese Americans with cancer, heart disease, or hypertension in Chicago. In addition, a mixed-method study using surveys and focus groups to understand the readiness, support, and resources of Chinese Americans living in Chicago to participate in ACP discussions with their family.

Study Timeline

• Study Start: 2023-11-08
• Study First Submitted: 2024-01-30
• Study First Submitted QC: 2024-01-30
• Study First Posted: 2024-02-07
• Status Verified: 2024-11
• Primary Completion: 2025-03-21
• Study Completion: 2025-03-21
• Last Update Submitted: 2025-07-21
• Last Update Posted: 2025-07-25

Recruitment & Eligibility

• Status: TERMINATED
• Sex: All
• Target Recruitment: 85

Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Readiness, Support and Resources for ACP Discussions	Immediately at the end of the study	The Advance Care Planning Engagement Survey was used to evaluate the readiness for advance care planning discussions among Chinese Americans living in Chicago.; In-depth understanding of the support and resources needed to engage in ACP discussions with their family among Chinese Americans who have experience discussing end-of-life care with others.

Trial Locations

Locations (1)

University of Illinois Chicago; 🇺🇸 Chicago, Illinois, United States