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Australian Mepolizumab Registry for Chronic Rhinosinusitis with Nasal Polyps (AMR-CRSwNP)

Not Applicable
Conditions
chronic rhinosinusitis with nasal polyps
Inflammatory and Immune System - Other inflammatory or immune system disorders
Respiratory - Other respiratory disorders / diseases
Registration Number
ACTRN12623000692639
Lead Sponsor
The University of Newcastle
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
ot yet recruiting
Sex
All
Target Recruitment
140
Inclusion Criteria

Participants will have a confirmed diagnosis of severe CRSwNP with eosinophilic inflammation. They will be eligible for assessment for commencement of Pharmaceutical Benefits Scheme (PBS)-subsidised mepolizumab per below criteria #3-7 (OR eligible to commence mepolizumab for CRSwNP outside of the PBS restrictions)

1.Able to provide informed consent
2.Age greater than or equal to 18 years
3.Diagnosis of CRSwNP confirmed by direct nasal examination (OR diagnosis from at least 2 physicians/ENTs experienced in management of CRSwNP)
4.Peripheral blood eosinophil (PBE) count of greater than or equal to 300 cells/µL
5.Adherence to intranasal corticosteroid therapy for at least 2 months (unless contraindicated or not tolerated)
6.Previous nasal polyps surgery; OR details of surgical exception
7.At least 2 of the following:
-Baseline bilateral nasal polyp (NP) score of greater than or equal to 5 (out of maximum score of 8, with minimum score of 2 in each nasal cavity)
-Baseline nasal obstruction visual analogue score (VAS) of > 5 (out of 10)
-Baseline overall symptom visual analogue score (VAS) of > 7 (out of 10)
8.Able to access a telephone and/or computer with internet

Exclusion Criteria

1.People highly dependent on medical care
2.Cognitive impairment preventing data collection

Study & Design

Study Type
Observational
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Secondary Outcome Measures
NameTimeMethod
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