Implementation and evaluation of the PART advisory board organisational structure to promote participatory research in the field of mental health

Recruiting

• Conditions: Participants are patients from forensic psychiatry (i.e. mentally ill offenders) and patients with dementia, as well as their relatives and researchers from both fields.

• Registration Number: DRKS00031241
• Lead Sponsor: niversitätsmedizin Rostock, Klinik für Forensische Psychiatrie

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2023-06-01
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 50

Inclusion Criteria

For people with lived experiences (patients, relatives or other affected persons):
- No moderate or severe dementia or comparable neurodegenerative diseases.
- Able to give informed and independent consent
- Direct or indirect experience with a specific neurodegenerative and/or mental illness or addiction problem and related to the commission of a criminal offence that led to placement in a forensic psychiatric ward
- Interest in participatory research

For professional experts :
- Professors, (senior) physicians, psychologists, peer support workers, scientists working in the fields of dementia/forensics/neurodegenerative diseases
- Experience in the field of patient involvement/participatory research not mandatory

Exclusion Criteria

For people with lived experiences (patients, relatives or other affected persons):
- Moderate or severe dementia and comparable neurodegenerative diseases
- Younger than 18 years of age
- No direct or indirect experience with a specific neurodegenerative and/or mental illness or an addiction problem and, in connection therewith, the commission of a criminal offence which led to placement in a forensic psychiatric ward.
- Unable to give informed and independent consent

For professional experts :
- Professors, (senior) physicians, psychologists, peer support workers, scientists not working in the fields of dementia/forensics/neurodegenerative diseases

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Establishment and sustainable implementation of the structures for a patient advisory council network

Secondary Outcome Measures

Name	Time	Method
Support of research projects in the field of forensics and dementia