Evaluation of Web-based Transition Education to Enhance Transition Readiness and Health Service Utilization in Adolescents/Young Adults With Congenital Heart Disease
Trial Snapshot
- Phase
- Not Applicable
- Status
- Completed
- Sponsor
- University of Michigan
- Enrollment
- 180
- Locations
- 2
- Primary Endpoint
- Change in transition readiness score, as measured by transition readiness survey
Study Overview
Brief Summary
The study looks to learn more about the helpfulness of web-based transition education and its effect on transition readiness and health service utilization in the adolescent and young adult congenital heart disease population.
Study Design
- Study Type
- Interventional
- Allocation
- Randomized
- Intervention Model
- Parallel
- Primary Purpose
- Other
- Masking
- None
Eligibility Criteria
- Ages
- 13 Years to 25 Years (Child, Adult)
- Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- •Diagnosed with congenital heart disease
- •Ages 13-25
- •Routine outpatient cardiology follow-up visit
Exclusion Criteria
- •New patients to cardiology clinic
- •Patients being evaluated for an acute medical problem
- •Patients who do not speak English
- •Severe neurocognitive impairment that precludes ability to complete the questionnaire
Outcomes
Primary Outcomes
Change in transition readiness score, as measured by transition readiness survey
Time Frame: baseline, 12 months
The transition readiness survey is used to measure a participant's self-reported knowledge about their health and readiness to take charge of their healthcare. Each item is scored from 1 to 5, where 1 means "No, I do not know how" and 5 means "Yes, I always do this when I need to." The overall score is determined by calculating the sum of all questions on a 100 point scale. A higher score indicates greater readiness for transition.
Secondary Outcomes
No secondary outcomes reported
Investigators
Karen Uzark
Clinical Professor of Cardiac Surgery and Pediatric Cardiology
University of Michigan