Evaluation of Web-based Transition Education to Enhance Transition Readiness and Health Service Utilization in Adolescents/Young Adults With Congenital Heart Disease
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Congenital Heart Disease
- Sponsor
- University of Michigan
- Enrollment
- 180
- Locations
- 1
- Primary Endpoint
- Change in transition readiness score, as measured by transition readiness survey
- Status
- Completed
- Last Updated
- 8 months ago
Overview
Brief Summary
The study looks to learn more about the helpfulness of web-based transition education and its effect on transition readiness and health service utilization in the adolescent and young adult congenital heart disease population.
Investigators
Karen Uzark
Clinical Professor of Cardiac Surgery and Pediatric Cardiology
University of Michigan
Eligibility Criteria
Inclusion Criteria
- •Diagnosed with congenital heart disease
- •Ages 13-25
- •Routine outpatient cardiology follow-up visit
Exclusion Criteria
- •New patients to cardiology clinic
- •Patients being evaluated for an acute medical problem
- •Patients who do not speak English
- •Severe neurocognitive impairment that precludes ability to complete the questionnaire
Outcomes
Primary Outcomes
Change in transition readiness score, as measured by transition readiness survey
Time Frame: baseline, 12 months
The transition readiness survey is used to measure a participant's self-reported knowledge about their health and readiness to take charge of their healthcare. Each item is scored from 1 to 5, where 1 means "No, I do not know how" and 5 means "Yes, I always do this when I need to." The overall score is determined by calculating the sum of all questions on a 100 point scale. A higher score indicates greater readiness for transition.