Implications of Nutrition Health Literacy on Accessibility and Engagement With Nutrition Information in Cancer Patients and Their Support Networks
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Cancer
- Sponsor
- Nottingham University Hospitals NHS Trust
- Enrollment
- 58
- Locations
- 1
- Primary Endpoint
- Nutrition health literacy - UK
- Status
- Terminated
- Last Updated
- 2 years ago
Overview
Brief Summary
An exploration of the impact of nutrition literacy on ability of cancer patients and their support networks to get, understand and use nutrition information during cancer treatment.
Detailed Description
The study is composed of two component projects: Project A: Validation of a NLit tool for UK population. NLit tool is a measurement tool developed at Kansas University to measure nutrition health literacy. It assesses the following functional literacy skills: numeracy \& literacy and the following nutrition knowledge fields: macronutrients, food labels, portion sizes, food groups and consumer skills. This project has two phases: Phase A: Nominal consensus groups x 2 - consumer adaptation and tool review for UK use and pilot testing of electronic tool. Phase B: Testing adapted tool in a group of cancer patients for statistical validation. Project B: Planned survey of people with cancer and their families to explore experiences of access to nutrition information This survey is a combination of validated and unvalidated questions built on models of nutrition health literacy. With validated fields being used to evaluate and understand responses to unvalidated questions. It explores access to nutrition information, self-efficacy, confidence, health care infrastructure and support with nutrition information, population demographics, food security, sources of nutrition information, perceived practical skills and knowledge base.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Members of the public (carers, health service users, lay persons)
- •Cancer patients with confirmed diagnosis
- •Friends or family members supporting a patient with a confirmed diagnosis of cancer
- •\> 18 yrs old
- •Received cancer treatment at Nottingham University Hospitals between Jan 15 and March 20
Exclusion Criteria
- •Paediatrics \< 18yrs at the time of diagnosis and treatment
- •Unconfirmed diagnosis of cancer
- •Patients on watch and wait
Outcomes
Primary Outcomes
Nutrition health literacy - UK
Time Frame: Jun 19 - Mar 2020
Measured by UK modified NLit developed during study cultural and linguistic modification of (Gibbs et al., 2018 - original validation) - 64 item questionnaire Scoring interpretation from study: NLit-UK (63item) and NLit-UK short (42-item) NLit-UK (63-item): Scoring interpretation is ≤44 correct is "likelihood of poor nutrition literacy"; 45-57 is "possibility of poor nutrition literacy"; and scores ≥58 is "likelihood of good nutrition literacy NLit-UK short (42-item): Scoring interpretation is ≤28 correct is "likelihood of poor nutrition literacy"; 29-37 is "possibility of poor nutrition literacy"; and scores ≥39 is "likelihood of good nutrition literacy
NVS-UK health literacy
Time Frame: Jun 19 - Mar 2020
Validated tool - 6 part question (Rowlands et al, 2013) Scoring interpretation: low health literacy (≤1), intermediate health literacy (2-3), adequate health literacy (≥4).
Secondary Outcomes
- Prior Knowledge(Jun 19 - Mar 2020)
- Educational status (modified HINTS4 Cyc1)(Jun 19 - Mar 2020)
- How important did you consider nutrition was in helping you through your treatment?(Jun 19 - Mar 2020)
- Economic status (modified HINTS 2)(Jun 19 - Mar 2020)