Cross-sectional networking for health-related care of people with Parkinson's disease in southern Lower Saxony

Recruiting

• Conditions: G20; G23.1; G23.2; G23.8; Parkinson disease; Progressive supranuclear ophthalmoplegia [Steele-Richardson-Olszewski]; Multiple system atrophy, parkinsonian type [MSA-P]; Other specified degenerative diseases of basal ganglia

• Registration Number: DRKS00034070
• Lead Sponsor: HAWK Hildesheim/Holzminden/Göttingen

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2024-04-15
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 500

Inclusion Criteria

Understand and speak German

- Arm1:
Affected persons: living in southern Lower Saxony (districts of Hildesheim, Göttingen, Goslar, Holzminden and Northeim), confirmed diagnosis of Parkinson's disease, able to consent to participation themselves, time to attend 2 to 3 group meetings in Hildesheim between May and June 2024, interest in active, participatory collaboration
Carers: professionally active in the health-related care of people with Parkinson's disease in southern Lower Saxony (districts of Hildesheim, Göttingen, Goslar, Holzminden and Northeim), time for participation in 2 to 3 group meetings between September and November 2024 in Hildesheim, interest in active, participatory cooperation

- Arm2: resident in southern Lower Saxony (district of Hildesheim, Göttingen, Goslar, Holzminden or Northeim), confirmed Parkinson's disease or relative/associate of a person with a confirmed diagnosis, time to attend 3 meetings over 6 months in presence at the Göttingen Health Campus, own mobile phone with camera, willingness to use a free app for photo transmission and communication with the project team

- Arm3: occupation in the health-related care of people with Parkinson's disease in southern Lower Saxony (districts of Göttingen, Hildesheim, Northeim, Goslar, Holzminden)

Exclusion Criteria

none

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
ParkNetz is the first project to identify needs and requirements for a cross-sectional integrated care network for people with Parkinson's Disease (PD) in southern Lower Saxony (districts of Hildesheim, Göttingen, Holzminden, Northeim and Goslar). The development of a requirements profile and network concept should serve as the basis for the establishment of the regional network.<br>Central question: How can a cross-sectional, interprofessional health-related care network be provided for people with PD in southern Lower Saxony?

Secondary Outcome Measures

Name	Time	Method
- How is health-related care currently provided for people with PD in southern Lower Saxony? (analysis of regional healthcare provision)<br>- What are the needs of those affected, their relatives and various healthcare stakeholders for cross-sectional integrated care? (needs analysis)<br>- Which core elements need to be implemented for cross-sectional integrated networking in southern Lower Saxony? (concept development for a network)<br>- What potential can digital services offer here? (potential analysis)