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临床试验/NCT01285882
NCT01285882已完成不适用

Representations of Transplantation in Patients With Mucoviscidosis, in Their Assistants and in Their Medical Persons

Nantes University Hospital1 个研究点 分布在 1 个国家目标入组 14 人开始时间: 2009年6月最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
入组人数
14
试验地点
1

研究概览

简要总结

Main objective : This project aims to have a better understanding of the influence of representations of patients with mucoviscidosis, their assistants and their medical persons in the choice of patients to accept or not lung transplantation.

Specific objectives :

  1. Identify the knowledge, representations, or feelings of patients which could constitute bridles or factors of motivation to use for transplantation.
  2. Identify the knowledge, representations, or feelings of medical persons which could constitute bridles or factors of motivation to the "encouraging" proposal to patients of lung transplant.
  3. Identify the knowledge, representations, or feelings of assistants which could constitute bridles or factors of motivation to the "encouragement" of lung transplantation at its close.
  4. Identify the needs of patients, assistants and medical persons to successfully reduce these bridles to transplantation and increase the factors of motivation.
  5. Compare the representations of patients, assistants and medical persons
  6. Search representations associated with patients who refuse the transplantation and those who accept the transplantation

研究设计

研究类型
Observational
时间视角
Prospective

入排标准

年龄范围
18 Years 至 —(Adult, Older Adult)
性别
All
接受健康志愿者

入选标准

  • For patients :
  • Adult patient (those concerned by the suggestion of lung transplant).
  • At the time of transplant indication : after the first suggestion of the medical person, before or after the preoperative graft check-up but before registration on waiting list.
  • For medical persons :
  • Medical persons involved in the suggestion of lung transplantation to the patients.
  • For assistants :
  • Adult close to the patient and that the patient sees as a resource person and advisor in his choices for the transplant : reference person having a major influence for the patient (spouse, parent, sibling, friend ...)

排除标准

  • For patients :
  • Patient with a psychiatric disorder
  • Patient in intensive care unit
  • Palliative care patient
  • Patient aged under 18 years old
  • Patient refusal
  • For medical persons :
  • Medical person refusal
  • For assistants :
  • Assistant or patient refusal

研究者

申办方类型
Other

研究点 (1)

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