NL-OMON25214Not yet recruitingNot Applicable
Decision support for couples with hereditary diseases and child wish: weighing pros and cons of reproductive options regarding transmission of gene mutations.
MUMC+/Maastricht University0 sites256 target enrollmentStarted: TBDLast updated:
Conditions
Trial Snapshot
- Phase
- Not Applicable
- Status
- Not yet recruiting
- Sponsor
- Enrollment
- 256
Study Overview
Brief Summary
We expect to write one publication about the RCT regarding the short- and long term effects of the decision aid on the primary and secondary outcome measures.
Study Design
- Study Type
- Interventional
Eligibility Criteria
Inclusion Criteria
- •One of the partners has an autosomal dominant hereditary condition, an X-linked condition, a chromosomal anomaly or both partners are carrier of an autosomal recessive condition for which all reproductive options are available in the Netherlands, participants should have an active child wish (within 5 years), and the female partner should be of reproductive age (18-41 years). Additionally, couples should have sufficient knowledge of the Dutch language and ample experience with the use of computers and internet.
Exclusion Criteria
- •Being pregnant at time of inclusion.
Investigators
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