Wellness and Distress in Health Care Professionals Dealing With End of Life and Bioethical Issues (WeDistressHELL)
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 317
- 试验地点
- 3
- 主要终点
- to estimate the prevalence of the subjective perception of burnout among health-care professionals dealing with end-of-life and bioethical issues.
研究概览
简要总结
Burnout, fatigue, distress and negative issues are in health care providers with different percentages. To date, little is known about the experience of burnout, fatigue and distress related with end of life and bioethical issues.
The main aim of this study is to quantify burnout and identify a set of variables (meaning of life, stress, moral distress, ethical climate, resilience, positive and negative affects) that may impact on professionals dealing with end-of-life and bioethics issues in their working life.
The project is an observational multicentre cross-sectional study, population-based.
The target population is composed by psychologists, nurses and other healthcare providers dealing with end-of-life/palliative care and other conditions.
The study will be conducted using a mixed methods, using both quantitative and qualitative approaches.
Regarding the quantitative approaches, standardized questionnaires will be administered anonymously to each participant in one time only. Concerning the qualitative approaches, semi-structured interviews will be carried out until the saturation of categories is reached according to the Grounded Theory methodology It is mainly attended that this project may shed light on wellness and distress related to end-of-life and bioethical issues faced in working life by health care providers, considering not only risk factors but also protective and positive ones.
The quantitative part of the research is supposed to identify the dimension of burnout in this health-care professionals category and to better clarify the role of some variables (meaning of life, stress, moral distress, ethical climate, resilience, positive and negative affects) that may modulate and affect wellness and distress experienced by this category of workers.
The qualitative part of the study will help to frame better the issue, detecting the main demanding aspects.
详细描述
Burnout, fatigue, distress and negative issues are well known in health care providers with different percentages.
This issue is internationally considered relevant; physicians have 36% more probability of developing burnout with respect to the American high school graduated population and, in general, medical students, residents/fellows, and early career physicians are more likely to suffer from burnout compared to the general population. Moreover, between 2011 and 2014, the trend of job satisfaction and burnout was getting worse in these worker categories. This condition has to be seriously taken in consideration; indeed, chronic distress and burnout in health care providers affect both the quality of patient care and satisfaction, as well as the employee professional quality of life and psychological and physical wellbeing.
Risk factors are various and the most relevant include work features, interpersonal relationships and personal factors. However, only recently literature has focused on positive and protective factors which modulate too the relationship between the health care professional and her/his job. To date, little is known about the experience of burnout, fatigue and distress related with end of life and bioethical issues in everyday working life.
What emerges from qualitative studies is that a relevant source of distress is linked to the physicians and nurses' necessity to take bioethical decisions against their personal values, and another source of distress arises from balancing family, institutional and moral constraints.
According to quantitative researches, the exposure to death and dying results in distress, fatigue and impoverishment of professional quality of life. Moreover, a review reports that critical care nurses experience their most stressful job situation when they have to manage with the unnecessary prolongation of life of their patients on the bases of family's desire. Indeed, a risk factor to burnout seems to be the ethical decision-making regarding end of life and foregoing life-sustaining therapy. Another qualitative and quantitative review shows that health care practitioners' end-of-life decision making may contribute to the distress and burnout experience.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 67 Years(Adult, Older Adult)
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •psychologists, nurses and other healthcare providers dealing with end-of-life/palliative care and other conditions possibly characterized by bioethical problems.
排除标准
- •not signing the consent to participate to the study
结局指标
主要结局
to estimate the prevalence of the subjective perception of burnout among health-care professionals dealing with end-of-life and bioethical issues.
时间窗: 2018-2020
Prevalence of the subjective perception of burnout among health-care professionals dealing with end-of-life and bioethcial issues
次要结局
未报告次要终点
