‘Re-engaging the disengaged’ in childhood cancer survivorship: A pilot study assessing the acceptability and feasibility of a nurse-led, oncologist-supported, preventative program

SW Sydney0 sites27 target enrollmentStarted: February 7, 2018Last updated: January 13, 2020

Conditions

Trial Snapshot

No summary available.

•We will open recruitment to:
•i) Survivors over 16 years.
•ii) Parents of survivors under 16 years. Parents of 16-18 year old survivors may participate in the study instead of the survivor. The most appropriate party (survivor or parent) to participate is at the decision of the family in discussion with the Clinical Nurse Consultant, and based on the maturity of the young adult and family preferences.
•Survivors will be eligible if they:
•iii) were diagnosed with a form of cancer prior to 16 years of age
•iv) were diagnosed at least 5 years prior to study participation
•v) were treated for cancer at one of the participating hospitals
•vi) have completed active cancer treatment
•vii) are alive and in remission at the time of study participation
•viii) have not received cancer-related long term follow up care in the last 2 years
•iv) Or are parents of survivors less than 18 years who meet the above criteria

•- Individuals with insufficient English language skills to complete the questionnaire
•- Individuals who in the opinion of the nurse or oncologist would be unsuitable for the study (e.g. severe mental health difficulties, severe language or cognitive limitations)
•- Individuals not capable of providing fully informed consent due to any psychiatric or cognitive difficulties
•Survivors who are not eligible for the intervention will be offered a face-to-face clinic appointment instead.

Sponsor

SW Sydney