‘Re-engaging the disengaged’ in childhood cancer survivorship: A pilot study of a nurse-led, oncologist-supported, preventative program
- Conditions
- Paediatric CancerCancer - Children's - OtherCancer - Children's - Leukaemia & LymphomaCancer - Children's - Brain
- Registration Number
- ACTRN12618000194268
- Lead Sponsor
- SW Sydney
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- All
- Target Recruitment
- 27
We will open recruitment to:
i) Survivors over 16 years.
ii) Parents of survivors under 16 years. Parents of 16-18 year old survivors may participate in the study instead of the survivor. The most appropriate party (survivor or parent) to participate is at the decision of the family in discussion with the Clinical Nurse Consultant, and based on the maturity of the young adult and family preferences.
Survivors will be eligible if they:
iii) were diagnosed with a form of cancer prior to 16 years of age
iv) were diagnosed at least 5 years prior to study participation
v) were treated for cancer at one of the participating hospitals
vi) have completed active cancer treatment
vii) are alive and in remission at the time of study participation
viii) have not received cancer-related long term follow up care in the last 2 years
iv) Or are parents of survivors less than 18 years who meet the above criteria
- Individuals with insufficient English language skills to complete the questionnaire
- Individuals who in the opinion of the nurse or oncologist would be unsuitable for the study (e.g. severe mental health difficulties, severe language or cognitive limitations)
- Individuals not capable of providing fully informed consent due to any psychiatric or cognitive difficulties
Survivors who are not eligible for the intervention will be offered a face-to-face clinic appointment instead.
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method