Evaluating Tools to Communicate Scleroderma Research Results to Patients

Not Applicable

Not yet recruiting

• Conditions: Scleroderma; Systemic Sclerosis

• Registration Number: NCT06373263
• Lead Sponsor: Lady Davis Institute

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2024-4-15
• Last Update Posted: 2 September 2024

Recruitment & Eligibility

• Status: Not yet recruiting
• Sex: All
• Target Recruitment: Not specified

Inclusion Criteria

Inclusion Criteria:<br><br> 1. Enrollment in SPIN Cohort, which requires a systemic sclerosis (SSc) classification<br> by a site physician based on 2013 American College of Rheumatology/European League<br> Against Rheumatism criteria, =18 years old, being fluent in English or French, and<br> have completed one SPIN Cohort assessment in the last year.<br><br> 2. External enrollment with patient-reported physician classification of SSc and age 18<br> or older.<br><br>Exclusion Criteria:<br><br>Patients not able to access or respond to questionnaires via the internet are excluded.

Exclusion Criteria

Not provided

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Understandability;Ease of use;Completeness

Secondary Outcome Measures

Name	Time	Method
Please to have received results;Intention to participate in future studies;Open-ended items