A study to test the use of a visual tool in measuring disease activity in children with dermatomyositis
Not Applicable
- Conditions
- Juvenile Dermatomyositis (JDM)Skin and Connective Tissue Diseases
- Registration Number
- ISRCTN59325153
- Lead Sponsor
- Alder Hey Children's NHS Foundation Trust
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Ongoing
- Sex
- All
- Target Recruitment
- 40
Inclusion Criteria
1. Medical diagnosis of Juvenile dermatomyositis (JDM) with or without overlap features.
2. Less than 18 years of age
3. Any time point of disease.
Exclusion Criteria
1. Unwillingness to participate.
Procedures are in place to ensure that patients are not excluded due to language barriers, geographical location, digital poverty or other factors.
No patient / parent will be coerced into involvement of this research project. Patients can choose to leave the research project at any time, without the need to explain their reasons.
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Feasibility of performing NFC in clinic and benefit (or not) to patients, parents and healthcare professionals. This will be assessed qualitatively through questionnaires and interviews.
- Secondary Outcome Measures
Name Time Method There are no secondary outcome measures