Japanese registry for lymphangioleiomyomatosis and alpha1-antitrypsin deficiency
Not Applicable
Recruiting
- Conditions
- lymphangioleiomyomatosis and alpha1-antitrypsin deficiency
- Registration Number
- JPRN-UMIN000038966
- Lead Sponsor
- Division of Respiratory Medicine Juntendo University Faculty of Medicine & Graduate School of Medicine
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 1000
Inclusion Criteria
Not provided
Exclusion Criteria
1) Patients who are not able to make a decision about entry to this research 2) Patients who are not eligible for entry to this research
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Assessment of the clinical information from the patients with lymphangioleiomyomatosis and alpha1-antitrypsin deficiency every 5 years.
- Secondary Outcome Measures
Name Time Method Alive or not. Health Questionnaire (EQ-5D-5L) The progressive rate of pulmonry function for the patients with lymphangioleiomyomatosis and alpha1-antitrypsin deficiency