Advance care planning in dementia Delphi study

Conditions: Dementia

Registration Number: NL-OMON23735

Lead Sponsor: European Association for Palliative Care (EAPC) commissioned the task; Leiden University Medical Center, Leiden, the Netherlands is responsible for the research.

Brief Summary: The approved study protocol, version 1.0 dated 16 June 2021, has been uploaded at the Open Science Framework (OSF) of the Center for Open Science, 7 September 2021 as part of an embargoed preregistration. van der Steen JT. Developing guidance in addressing the challenges of advance care planning in dementia: an EAPC Delphi study. EAPC 17th World Congress online 6-8 October 2021. Abstract will be published in special issue of Palliative Medicine.

Detailed Description: Not available

Recruitment & Eligibility

Status: Pending

Sex: Not specified

Target Recruitment: 100

Inclusion Criteria

Delphi panellists should:
•have expertise on advance care planning, dementia care, or advance care planning in dementia through practice, policy, research or clinical experience;
•be sufficiently capable to understand, read and write English;
•provide informed consent to participate in the Delphi study as indicated ahead of completing any online survey.

Exclusion Criteria

Experts will be advised not to participate if they self-identify as being overly emotionally involved in the topic. They will be excluded from participation if they do not agree that the data they provide will be collected, used and stored securely for this research.

Study & Design

Study Type: Not specified

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Consensus on a conceptualisation and recommendations for practice and policy and recommendations for further research on identified divergences.<br><br>We will ask the panellists to rate importance of specific issues concerning advance care planning in dementia on a 10-point scale where 0 = not important and 10 = very important. We will use the 5-point scale used previously in the EAPC dementia Delphi study, however with the numbers shown as well, thus representing a numerical scale with verbal descriptors. The response options are: ‘strongly disagree’ (1), ‘moderately disagree’ (2), ‘neither agree, nor disagree’ (3), ‘moderately agree’ (4) and ‘strongly agree’ (5) and a do not know option. The criteria for consensus from the EAPC dementia Delphi study apply, published as a white paper at https://doi.org/10.1177/0269216313493685

Secondary Outcome Measures