Guidance on advance care planning in dementia: a European Association for Palliative Care (EAPC) Delphi study on conceptualisation and recommendations for practice, policy and research

European Association for Palliative Care (EAPC) commissioned the task; Leiden University Medical Center, Leiden, the Netherlands is responsible for the research.0 sites100 target enrollmentTBD

Overview

Phase: Not Applicable
Intervention: Not specified
Conditions: Not specified
Sponsor: European Association for Palliative Care (EAPC) commissioned the task; Leiden University Medical Center, Leiden, the Netherlands is responsible for the research.
Enrollment: 100
Status: Not yet recruiting
Last Updated: 2 years ago

Overview Investigators Eligibility Criteria Outcomes Similar Trials

Overview

Brief Summary

The approved study protocol, version 1.0 dated 16 June 2021, has been uploaded at the Open Science Framework (OSF) of the Center for Open Science, 7 September 2021 as part of an embargoed preregistration. van der Steen JT. Developing guidance in addressing the challenges of advance care planning in dementia: an EAPC Delphi study. EAPC 17th World Congress online 6-8 October 2021. Abstract will be published in special issue of Palliative Medicine.

Registry

who.int

Start Date

TBD

End Date

TBD

Last Updated

2 years ago

Investigators

Sponsor

European Association for Palliative Care (EAPC) commissioned the task; Leiden University Medical Center, Leiden, the Netherlands is responsible for the research.

Eligibility Criteria

Inclusion Criteria

•Delphi panellists should:
•have expertise on advance care planning, dementia care, or advance care planning in dementia through practice, policy, research or clinical experience;
•be sufficiently capable to understand, read and write English;
•provide informed consent to participate in the Delphi study as indicated ahead of completing any online survey.

Exclusion Criteria

•Experts will be advised not to participate if they self\-identify as being overly emotionally involved in the topic. They will be excluded from participation if they do not agree that the data they provide will be collected, used and stored securely for this research.