Readiness to Disclose Mother's HIV Diagnosis to Their Children in Beijing, China
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- HIV
- Sponsor
- Yale University
- Enrollment
- 5
- Locations
- 1
- Primary Endpoint
- readiness to disclose
- Status
- Completed
- Last Updated
- 6 years ago
Overview
Brief Summary
Specific aims of the 1-year project are to pilot test the disclosure support intervention by (a) evaluating acceptability and feasibility with a preliminary randomized trial among 10 HIV+ mothers (5 in the intervention group and 5 in the treatment as usual (TAU) group) and (b) assessing outcomes in mothers (quality of life and mental health indicators, adherence, social support, and disclosure stress, efficacy, readiness, and completion). The intervention will be compared to treatment as usual, with baseline (0 weeks), immediate post-intervention (4 weeks), and 12-week follow-up (16 weeks) assessments.
Detailed Description
HIV disclosure to children has been shown to strengthen family relations and increase assistance with medical care, reinforcing the parent's willingness to live. Some Chinese children aware of their parents HIV diagnosis do exhibit emotional and social dysfunction; however, adequate support from caregivers (e.g., grandparents or even their HIV+ parents) can improve the children's quality of life and academic performance. There is a clear need for practical interventions to address parental distress around HIV disclosure in China, where cultural norms often emphasize family identity and cohesion and underscore the need for family-based programs, which have been shown to be feasible and efficacious for HIV-affected families.
Investigators
Eligibility Criteria
Inclusion Criteria
- •HIV+ mother ≥18 years of age,
- •not psychotic or demented;
- •receiving clinical care at the Ditan hospital,
- •a mother of an HIV-negative child of age 13-25 years who does not know about the mother's infection;
- •well enough to attend study sessions as the clinic.
Exclusion Criteria
- •no psychotic or demented
Outcomes
Primary Outcomes
readiness to disclose
Time Frame: 16 weeks
This data will be collected and evaluated with qualitative methods using the Disclosure Distress Questionnaire
Secondary Outcomes
- quality of life via Medical Outcomes Study HIV Health Survey(16 weeks)
- depression via the Center for Epidemiologic Studies Depression Scale (CES-D)(16 weeks)
- adherence(16 weeks)
- social support using the HIV Social Support tool(16 weeks)