NCT05328050
Recruiting
N/A
Local Registry for Data Collection of Patients With Achondroplasia / Hypochondroplasia for Epidemiological, Care and Research Studies
Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico1 site in 1 country200 target enrollmentSeptember 1, 2021
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Achondroplasia
- Sponsor
- Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico
- Enrollment
- 200
- Locations
- 1
- Primary Endpoint
- Registry of Achondroplasia and Hypochondroplasia Patients
- Status
- Recruiting
- Last Updated
- 4 years ago
Overview
Brief Summary
This registry is a observational, single-center study designed to collect clinical data on patients with achondroplasia and hypochondroplasia.
Investigators
Maria Francesca Bedeschi
Principal investigator
Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico
Eligibility Criteria
Inclusion Criteria
- •Confirmed diagnosis of achondroplasia/hypochondroplasia
- •Patients (and/or Parents legal guardian when required) able to provide informed consent
Exclusion Criteria
- •Absence of diagnosis of achondroplasia/hypochondroplasia
- •Patients (and/or Parents legal guardian when required) not able to provide informed consent
Outcomes
Primary Outcomes
Registry of Achondroplasia and Hypochondroplasia Patients
Time Frame: 10 years
Collection of medical information of achondroplasia and hypochndroplasia patients intended for use in future research studies.
Study Sites (1)
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