NCT05328050招募中不适用
Local Registry for Data Collection of Patients With Achondroplasia / Hypochondroplasia for Epidemiological, Care and Research Studies
Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico1 个研究点 分布在 1 个国家目标入组 200 人开始时间: 2021年9月1日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 200
- 试验地点
- 1
- 主要终点
- Registry of Achondroplasia and Hypochondroplasia Patients
研究概览
简要总结
This registry is a observational, single-center study designed to collect clinical data on patients with achondroplasia and hypochondroplasia.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Other
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Confirmed diagnosis of achondroplasia/hypochondroplasia
- •Patients (and/or Parents legal guardian when required) able to provide informed consent
排除标准
- •Absence of diagnosis of achondroplasia/hypochondroplasia
- •Patients (and/or Parents legal guardian when required) not able to provide informed consent
结局指标
主要结局
Registry of Achondroplasia and Hypochondroplasia Patients
时间窗: 10 years
Collection of medical information of achondroplasia and hypochndroplasia patients intended for use in future research studies.
次要结局
未报告次要终点
研究者
Maria Francesca Bedeschi
Principal investigator
Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico
研究点 (1)
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